Quote:

My husband will just have to learn that if he is not going to make the effort to understand what is happening, then I am not likely to extend any sympathy when he runs into difficulty. I have been married for 29 years and I am fast running out of patience over his inability to understand that I do have these problems and that I am not making it up.





If you've been with him 29 years there mst be a reason. Who knows? I guess I've learned that some of the dearest people to me just do not omprehend how much things ache and hurt.

A lesson that AS has taught me is that won't play tit for tat. I know some folks who hardly know me seem incredibly empathetic to my woes and admire what they deem to be my ocurage to live such a normal healthy bodied life in a unhealthy body. On the other hand, some folks who have seen me suffer my worst pains just don't get it. Once I was aghas by their "indifference" but now I suspect that the gift to empathize is like the abilty to have a high pain threshold. Some folks got it and some folks don't. I won't begrudge someone who just can't see my pains, because they truly can't see it. SOmetimes loved ones don't want to see it because they can't figure out what they should do for us, so they treat us normal hoping we will be healthy and normal by their standards.

To be absolutely honest there are days when I prefer to have te folks with the blinders on around me. I like folks who push me and don't treat me with kid gloves.

I am not advocating that yu absolve your husband's lack of sensitivity, just that you comprehend tt maybe he's too doggone scared to admit to himself that you suffer from a lifelong chronic serious ailment. Heck I try on a daily basis not to admit it to myself.

ANyway folks here ko t hurts like heck and that the best of our friends and loved ones will sometimes and in som cases all the time refuse to see our struggles.



L-R: Julianna, Jamie, Diane and Tonimarie

stevec-they also serve who stand and wait