Hi Kevin & Molly,
Thank you so much for responding . I have been following the foot thread elsewhere too.
I found with Humira that I seem to get really low on the day of injection – no energy, slightly blue mood. I’ve been on Cymbalta for 3 months now and it had taken the heel spur pain away. So this new “panging” on the side of my foot got me thinking… is it just me, “IT” or the Humira?
I have not even considered ice since I work full time and its not convenient and so I just hobble a lot. Does not do good for the back either!
Incidentally Molly, I had heel spur problem in 96-98 in Paris and a rheumy there made tiny injections into the sides of my heel and within 3 treatments - poof – gone (that was after the Amer. Hosp doc stuck me with a huge needle that did not work). At the time I never thought it could have been a precursor to what’s happening to me now.
Back in 2001 I got uvitis. That eye doctor, bless her for being so thorough, sent me for blood work and thus started the trail … (elevated c reactive, “general inflammation”,
-HLAB27, etc.). But it was not until just 3-4 yrs ago the heal spur came back and the intense pain on the TOP of my feet was a new thing and I’ve gotten stiffer and stiffer all over.
I finally asked my GP “OK I just want to know if I have to live this way the rest of my life and stop complaining or…”. My GP had been perplexed about the whole foot thing. I thought it was just a “Lucy” problem. She gave me the chance to go to Lahey Clinic where the rheumy there ordered a specific MRI and – Poof! There “it” showed on the SI.
Many ASers report the same crushing feeling on the tops of the feet.
I will tell her next time I go see her so she knows - she is open to understanding the autoimmune thing I have. Did I mention I have very high insteps so much so that I can not get my feet into normal shoes….. What has helped was to wear shoes tight around the tops, but it still hurts. I even trace the alphabet in the air with my feet before rising. No help.
I guess, what I have to do is resolve to take it one day at a time at my age. I’m used to go go go. But that has not been the case the last few years. I worry that the Embrel did not work and Humira may not. And I still can not play with my 9 year old….
Thanks again for your input,
Lucy
