Hi Lucy! I can't really answer your questions but I wanted to let you know that you are not alone. I have battled this for the last few years. For me, I have just finally decided to own it- just like the AS.
Be sure to mention it to your doctor- I have had atleast two meds that made it much worse.
Hang in there- vent anytime you like- pm me if you ever just want someone to chat with.
Anna