Originally Posted By: EricaK
Originally Posted By: Sue22
why do the nsaids either cause side effects or not work! i see ssz in my near future
NSAIDS ~ sigh, how I miss thee. SSZ ~ unfortunately I'm ANA+ which makes that too much of a risk for me, because one of my sister's already has lupus AND an allergy to sulfa.

I told a new guy on KickAS that I get more good ideas and advice on this forum than I have ever gotten from ANY doctor.

You guys ROCK! cheerleader

Go TEAM! clap

i've heard others say ssz messed them up (thinking molly with the ringing in the ears for one, think i got that right)........well, just hoping on my way to a drug that works that we don't have any irreversible side effects, that would suck! a little gastritis or edema that goes away when the drug is pulled i can live with, so long as that's also not causing long term problems that i'm not aware of. sometimes i really do feel like a human guinea pig having to try all these things that based on my history are likely to cause problems instead of just moving to something completely different, oh well, patience, i've already tried 9 different nsaids / cox 2 inhibitors, there really aren't too many more left out there to test me on. crazy

as for that second statement, i second that......the amount of useful info and ideas and advice i've gotten here is invaluable! cheerleader


Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)