I have heard that from my sister, that her rheumy wants her to come to her visits as she is. Without any internal or external modification. I hope you take the pain map! Probably I've already told you this, but I took three separate pain maps with me. One for bad days, one for average days, and one for spectacular days. I also used yellow, orange, and red highlighters to make clear where my worst pain spots were. Red worst - yellow least. And I didn't swim or stretch or anything before he saw me. It was weird, because even though I'm ANA+ and my sister has lupus, he zeroed right in on my inflexible spine and sacrum pain. All along I'd been saying my hip hurt, and he said "point to your hip", and I pointed to my sacrum. Then he drew the blood for the RF and HLAB27. The guy's a genius!


ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009

Movin' it so I don't lose it!