Been there, done that. It was a very hard decision for me but I decided to go for it to see if I could have a better quality of life. The cost was intimidating to me too. The staff in my dr's office told me about Healthwell Foundation. I called them and they agreed over the phone to pick up my co-pay. They told me then if I could afford to go ahead and start it they would reimburse me. They were absolutely wonderful people.

I did start it. I had some problems with the first infusion and had to have some extra steroids but got through it. The 2nd was easier and then it got very easy. I guess my body had to decide to accept it. smile I took it for a year but I did not get any help from it and in fact got rather ill.

I would certainly try it again. I have done several things to keep going including a rather big spine surgery almost a year ago. I am scheduled for another CT Myleogram next week and possibly another surgery.

I think it is all a very personal decision and you have to weigh the pros and cons for yourself. I know I would not be happy if I didn't do everything I can to live the kind of life I hope to live.

Best wishes as you make this decision.

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RUN WHEN YOU CAN,
WALK IF YOU HAVE TO,
CRAWL IF YOU MUST,
JUST NEVER EVER GIVE UP!



"A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS."

"A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."