Welcome Nicki:
People here are very diverse (from all over the world), are supportive and open minded. It is a great place. I am happy that you found it!
The no/low starch diet makes a huge and obvious difference in the intensity of my symptoms. I hope that it helps your son. Keep at the diet with your son.
June 22 gives you some time to prepare for the visit. How old is your son now?
Since about 70% of people with AS have a gut dysfunction have you already seen a gastrointerologist? Does your son have unusual gut complaints? I believe that a proper functioning gut is important in the treatment of AS as it may reduce the need for medicine and reduce the disease progression/damage.
Best wishes.
Kevin
HLA-B27 neg, vague AS symptoms in 20s and early 30s
1993:fibromyalgia (age 25)
2013.07:Reverse blockage in a SCUBA accident
2013.08:Scratched by a sick cat
2013.09:Strange sore throat then meningitis
2014:Chronic inflammation at the base of the skull
2014 to early 2015:excess NSAID use developed complete axial inflammation, included psoriasis
NSD helped well and but was not perfect
2018.07: weak +'ve tests for borrelia, babesia, bartonella and mycoplasma pneumonia using Armin Lab, ANA=equivocal
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