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Joined: Aug 2004
Posts: 549
Veteran_AS_Kicker
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OP
Veteran_AS_Kicker
Joined: Aug 2004
Posts: 549 |
HUMIRA Here I come  Great news today I begin the Humira countdown, I am now on the preliminaries of starting the drug had my chest xray, managed to fail the old flex and bend so I now fit the criteria for the drug, so I'm due back at hospital in 2 weeks to learn to jag myself (see I'm only qualified to jag other innocents)and go through all the paper work and hopefully then they will release the drug the first choice is Humira but they also have me down for Enbrel so I guess its just the luck of the draw. So over the next few weeks there be all sorts of emotion nervoussness excitement (that something might actually have a chance to work) and well dred too, but I know I'm lucky to recieve these drugs, and further more to recieve them on the NHS. I done some celabratory shopping too, which was fun, as i don't get far at all these days and very rarely near a city, so that was nice, but we've been gone all day from 8.30 this morning and back at 8 tonight from the hospital(we have a 3 hours drive each way) so really puffed out, but i wanted to come on and share. unfortunatly the old husband has a dental abcess and is pacing like mad so i'm going to go nurse him(annoy him) for a while.  love to all, speak tomorrow  Laura PS Possi sorry i've not called, I'm all in at the moment, glad you enjoyed the photos, will pop on tomorrow for more chatting, love you xx 
LadyKitty Kicking AS
When I am down and, oh my soul, so weary
When troubles come and my heart burdened be
Then, I am still and wait here in the silence,
Until you come and sit awhile with me.
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Joined: Oct 2006
Posts: 2,001
Major_AS_Kicker
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Major_AS_Kicker
Joined: Oct 2006
Posts: 2,001 |
Great news! Humira has helped many people with AS and here's hoping it works for you too!
Best to you!
Karen
I cannot make the universe obey me. I cannot make other people conform to my own whims and fancies. I cannot make even my own body obey me.
Thomas Merton
Hope is the thing with feathers that perches in the soul - and sings the tunes without the words - and never stops at all.
Emily Dickinson
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Good luck Laura!!!
Warm hugs,
Kat
A life lived in fear is a life half lived. "Strictly Ballroom"
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Joined: Oct 2007
Posts: 32
Member
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Member
Joined: Oct 2007
Posts: 32 |
Hi Laura,
I am one of the 'newbies' of KickAS, I was diagnosed just a month and a half ago. I am glad you will be on Humira, my Rheuma told me it is approved for AS too. So far I have 3 inj. , and even my condition is not so good at this time I could told you that I have been feeling some improvement. The first time I was so bad that I could no even sit. The last inj. (#3) even as bad as I have been feeling, I could told you at least a little improvement have been done; and that was very important for my Dr. Because he just asked: Please told me truth, I know you feel bad, but you feel less bad?
I hope you start feeling better faster than me, at least you have something that I don't have; some treatment before. In my case the difficult part is that I could not use NSAIDs because I am allergic to aspirin, so that make my improvement not that faster, but I will improve too, and I could told you it works.
Something not fun, In my case, since I am on the beginning and I have some issues with the disease (I don't accepted) and the injection (still have panic), I am very fortunate that my Dr. nurse, which is great, put me the Humira, and the truth you will feel a little bit more than Enbrel on the inj site, but this is to be better. At least it is every other week not each week which is like heaven.
Please keep in touch and let us know how everything goes. Zaida.
Zaida
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Joined: May 2002
Posts: 2,370
Colonel_AS_Kicker
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Colonel_AS_Kicker
Joined: May 2002
Posts: 2,370 |
Good Luck on the Humira Laura....I hope it works for you
Sherri
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Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
Laura, so glad to hear from you. I had to get the Botox injections for my eyes again the first of the week and was gone all day and then I have been at PT a lot so even if you called chances are that I wasn't here. When my eyes ae spasmed shut, you know I am not worth much to talk to or be around.  Just drives me crazy with the pain and the not being able to see. It is much better now. I decided I wanted one more thing in your package so it didn't get shipped off until Monday and they told me it would take 5 to 7 days so you should get it soon.  I am anxious to know when you get it. I loved the pictures. He is so darling. I am going to be glad to hear how the Humira does for you. Since I stopped the Remicade, MTX and Prednisone I am wondering what he is going to suggest when I go back which is in a couple of weeks. The PT helps off and on. I really don't want any more of those potent meds but we'll see. I can't keep functioning (trying to) like this. Hugs to you all. Love you. Possi 
Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
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