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Joined: Oct 2003
Posts: 470
Warrior_AS_Kicker
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OP
Warrior_AS_Kicker
Joined: Oct 2003
Posts: 470 |
Kat,
Thanks & I hope it clears up real soon.
Best wishes.
George.
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Joined: Dec 2004
Posts: 55
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Active_Member
Joined: Dec 2004
Posts: 55 |
George, I am curious, has it spread to your retina or has it mostly remained in the front of the eye? My second bout of Iritis which lasted about 5 months was treated pretty aggressively by a team of Opthamologists. I ended up being referred to and treated exclusively by a Retinal specialist as it spread to the back of my eye. I had to end up getting an injection directly into my retina. Before it got to that though, I was on a regimen of drops, creams, and oral steroids. It is strange that they have just kept you on the "typical" dose of pred and not offered any alternatives since it has been going on this long.
Good luck, I can empathize with how difficult it is to deal with this long term!
Life will be the Death of me
HLA-B27+, DX AS 2004, Humira 40mg Bi-weekly
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Joined: Oct 2003
Posts: 470
Warrior_AS_Kicker
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Warrior_AS_Kicker
Joined: Oct 2003
Posts: 470 |
Thanks for your reply
I really don't know if it has spread, my specialist hasn't mentioned that to me.
Neither has she offered me any other treatment or any explanation why my right pupil is enlarged. I'm going back to see her again in about a weeks time & I'll see what she has to say.
I have an appointment to see my rheumy at the end of Feb, may have the chance to switch to Humeria from Remicade, as Remi is no longer cutting the mustard for me.
I'm hoping Humeria (if I get the chance), will benefit my iritis. This wasn't my eye specialist idea though, mine to be honest.
Best wishes.
George.
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Joined: Mar 2008
Posts: 3,233
Imperial_AS_Kicker
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Imperial_AS_Kicker
Joined: Mar 2008
Posts: 3,233 |
Quote:
I had to end up getting an injection directly into my retina.
Glad to hear from somebody else who went through that!
In my case, it had at least a bit of a humorous end. After I had gotten my shot, and I started to get better, I decided to venture out into the world again to celebrate. So I bought 4 tickets to a Peter Gabriel concert, who I was always a big fan of, and invited my friend from England, and asked her if she wanted to bring her teenage son. She wrote back, that he wasn't really into that kind of music, and would rather "have needles stuck in his eyes!"
"Having done both," I wrote back, "I recommend the concert."
Dow
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
 Funny because it's true! Thank you for sharing that story. Hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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Joined: Oct 2003
Posts: 470
Warrior_AS_Kicker
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OP
Warrior_AS_Kicker
Joined: Oct 2003
Posts: 470 |
Hi Guys,
Just another update on my irits. Six months on, taking pred drops every 4 hours, left pupil still dialted. My eye specialist said that she doesn't know why my right pupil is more dilated than my left, reacts to light as it should. That fills me with confidence. She also said that my eye looks clear & no inflammation within my retina. The effected eye is still sensative to bright light & at times painful.
She also mentioned to me that I have a white patch on my retina, having bloods taken next week. May be a circulation prob, not sure? My blood pressure was normal last time I had it checked.
Doe's anyone know if a white patch on my retina could cause the probs I'm suffering from? Neither am I sure if swapping onto Humria would help?
Thanks.
George.
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Joined: Mar 2009
Posts: 25
Member
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Member
Joined: Mar 2009
Posts: 25 |
Boroboy,I have had Iritis flare ups so often I can't even tell you. I would get it so bad that they called me Iritis Queen in the DRs office. I was diagnosed with AS 5 yrs. ago. The Dr would give me steriod drops in my eye. And also dilating drops so that my pupil would stay dilated for pain & also so my pupil would not attach to the back of my eye.The inflamation was so bad,when the Dr looked in my eye he could only see half of my pupil. The Eye Dr could not get it to dilate so he had put in injection in it.So when I get a flare up I have to get prednisone & dialting drops. Sometimes I have to go on steriod by mouth too. Then it would finally clear up. I am now on Remicade & I was on Humira before that. I have not had a flare up for 5 yrs. I just got my 1st one back a couple of weeks ago. It was not as bad though.The Dr. said it could of been my dry eyes that flared it up. I do hope I don't get it back. My Rheumy said I might have to up my dose of Remicade. Iritis & sciatic nerve are my issues with AS.I am confused why your pupil would dilate with out any drops.That is a long time to have Iritis. I had to keep going back to the DR. until it had cleared up. That's how serious it is. Do you have a good Eye Dr? Please know that this is part of AS but there is a lot of support out there. You just have to find it. Best of Luck.. Please take care of it!!!!
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Joined: Dec 2004
Posts: 55
Active_Member
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Active_Member
Joined: Dec 2004
Posts: 55 |
Quote:
Quote:
I had to end up getting an injection directly into my retina.
Glad to hear from somebody else who went through that!
In my case, it had at least a bit of a humorous end. After I had gotten my shot, and I started to get better, I decided to venture out into the world again to celebrate. So I bought 4 tickets to a Peter Gabriel concert, who I was always a big fan of, and invited my friend from England, and asked her if she wanted to bring her teenage son. She wrote back, that he wasn't really into that kind of music, and would rather "have needles stuck in his eyes!"
"Having done both," I wrote back, "I recommend the concert."
Haha, great story! It wasn't fun, but would you agree it's not as bad as it sounds?
Life will be the Death of me
HLA-B27+, DX AS 2004, Humira 40mg Bi-weekly
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Joined: Dec 2004
Posts: 55
Active_Member
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Active_Member
Joined: Dec 2004
Posts: 55 |
Quote:
Hi Guys,
Just another update on my irits. Six months on, taking pred drops every 4 hours, left pupil still dialted. My eye specialist said that she doesn't know why my right pupil is more dilated than my left, reacts to light as it should. That fills me with confidence. She also said that my eye looks clear & no inflammation within my retina. The effected eye is still sensative to bright light & at times painful.
She also mentioned to me that I have a white patch on my retina, having bloods taken next week. May be a circulation prob, not sure? My blood pressure was normal last time I had it checked.
Doe's anyone know if a white patch on my retina could cause the probs I'm suffering from? Neither am I sure if swapping onto Humria would help?
Thanks.
George.
I thought the white patch on the retina in fact indicated inflammation?
In regards to the remicade, my Doctor is putting my on Humira specifically for the fact that it has been known to treat Iritis where as the other biolgics aren't as successfull in that area. So it's probably worth a try to see if it helps the Iritis.
Life will be the Death of me
HLA-B27+, DX AS 2004, Humira 40mg Bi-weekly
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Joined: Oct 2003
Posts: 470
Warrior_AS_Kicker
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OP
Warrior_AS_Kicker
Joined: Oct 2003
Posts: 470 |
My iritis has appear to have cleared up.
9 months on from my initial first attack, still sensitive to bright direct/indirect sunlight. Have to wear sunglasses during the day (when sunny) & watching tv at night. My eye specialist has no answers. At least the redness within the white part of my eye has now reduced, but still have pain. I'm seeing my Optemtoligist in two weeks time again, but I expect she will have no answers.
As you say, may be related to my AS.
Thanks for your input.
George.
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