just a quick hello. lots of good stuff on this site. if you are in the mood for sillyness, you can read through the on-line party we had for possi
if you're looking for more serious help, there's all kinds of posts here.
i'm in the "can't diagnose you" stage of whatever i have,
but so many of my symptoms seem to overlap with everyone here,
so that's why i started off here.
if they ever figure out what is wrong with me and its not AS,
then i guess i become part of the friends and family on here.....
after a year, it definitely feels like friends and family.
maybe they'll figure out i do have AS, or undiff spondy.....just not yet?
who knows. i don't have uveitis/iritis, but i do have blepharitis.
i don't know if i have psoriasis, but over the last 2 years i've gotten some really strange rashes; the first on my legs couldn't be diagnosed, the most recent over my SI, was incredibly dry skin that cracked to the point that it was bloody in the middle of these dry rings of scaly skin, i took a photo to show a dermatologist when i can get there, a photo may not be good enough though. other really dry patches out of seemingly no where. and i have lots of tendon problems and the SI problem, but xrays and CT didn't show anything other than very mild DJD (degenerative joint disease, osteo), but not enough to cause my SI problems......
so here i am....still in limbo land.
we have Von Willebrand in our family. my father had it, thought it was hemophilia at first. my sister wondered if that was why she miscarried so much as she does have the gene. i don't know if i carry the gene, but i don't seem to have the disease as far as i know.
anyway, just about anything you are curious about, someone here seems to have either an answer from experience or at least a good idea.
and if its just someone to listen, someone to understand, someone to share with,
this place is perfect.
welcome,
sue
