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Joined: Feb 2010
Posts: 1,524
Gold_AS_Kicker
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OP
Gold_AS_Kicker
Joined: Feb 2010
Posts: 1,524 |
Thanks so much for all your comments on this.
MCM I'm very interested in what you say about pregancy and nursing. In my 10 years of remission I have had 3 babies and nursed all of them. I stopped nursing my 3rd baby before Christmas (2009). Maybe this has protected me in some way.
Chris Firstly, I'm really sorry to hear how drastically AS has changed your life. It must have been such a shock to go from your physically demanding job to suffering the dehabilitating effects of AS. I am back on the NSD as this is the only way I know to rid symptoms of AS for me. Last night, however, we were entertaining and I slipped off the wagon. I had a slice of tart (a small slice!!) but I am paying the price this morning. So that is a test which proves to me that the diet is working when I stick to it properly. My pregnancy was over a year ago - but that was when I started to go off the rails food wise - I didn't make that very clear. Thanks for you kind words.
Jroc I am intrigued by your theories on trauma and AS. What you say rings very true with me.
KickAS and help others do the same!
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Joined: Sep 2001
Posts: 1,985
Captain_AS_Kicker
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Captain_AS_Kicker
Joined: Sep 2001
Posts: 1,985 |
Hi Wendy,
Shug had a fundoplication to correct his reflux, I've no idea if it was a full or partial one as at that time we questioned nothing medical. It's been a total success and Shug is still reflux free, it made an amazing difference to his life, however the op we believe was the trigger for his AS.
I've not researched if there is a link between reflux and AS, all I know is Shugs mum also has AS and also had corrective surgery for reflux/hiatus hernia, coincidence maybe...or not, who knows.
Take care
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Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
I personally believe it. Any kind of stress on your body whether it is physical, mental or emotional can cause a flare of these diseases. I hope you feel better soon.
Possi
Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
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darryn1972aussie
Unregistered
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darryn1972aussie
Unregistered
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im not really sure to be honest but i can tell you i suffered spondylolisthesis just before pre-AS kicked in. first symptoms was great toe swelling and sore and stiff lower back, then achilles problems, then knee cyst, then lots of lower back pain and swelling, then heaps of SI pain, then shoulder and kneck pain, then middle back pains with associated side rib pains, then breathing difficulties, then weaken of whole body sort spots on hip bones. all this began for me about 20 years ago about 6 weeks into Army Field Engineering Sapper Training. id say the NBC riot gas training chambers wouldnt have been exactly the best stuff for general health either.
Last edited by darryn1972aussie; 02/07/10 03:10 PM.
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Joined: Apr 2002
Posts: 1,358
Bronze_AS_Kicker
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Bronze_AS_Kicker
Joined: Apr 2002
Posts: 1,358 |
IN my family trauma seems to be what AS is triggered by.My father in ww2 the ship he was loading blew up broke his back in 3 places AS set in .When i was 16 i broke my neak in a car accident AS sent in after .My son 28 had a 600 lb gate fall on him 6 months later AS.I think different things cause this old AS and different things trigger it. Bradford
To the world you may be one person,but,to one person you may be the world.
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Hi there, I first began having back pain when I was in my teens. I do remember falling on my way to school one day when I was 12, but really, the back pain didn't start for another three years. Also, I never had the kind of energy that most kids have. Always felt as tho I was running through mud and this has alleviated since starting Remicade. So, I can't say that there was a physical trauma that triggered my AS.
However, AS is an auto-immune based disease and anything that causes stress of any kind can and will trigger a flare. Our bodies respond to stress like this. I'm sorry to hear you're having a rough go of it.
Hugs,
Kat
A life lived in fear is a life half lived. "Strictly Ballroom"
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Joined: Nov 2008
Posts: 419
Black_Belt_AS_Kicker
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Black_Belt_AS_Kicker
Joined: Nov 2008
Posts: 419 |
Jroc theories really make sense to me!
Tink - the only information on pregnancy and AS I've found says there's no link between pregnancy and remission which can sometimes happen with other arthritis, but have no idea what studies have been done on it. I've read some don't get any better, some do and some get worse. But my rheumy told me that it could bring on remission? so who knows, but i do know my symptoms worsen with my cycle, so it made sense to me that they would subside while pregnant and nursing. But the mom's suffering during their pregnancies could argue against that - its such a variable disease!
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Joined: Nov 2008
Posts: 419
Black_Belt_AS_Kicker
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Black_Belt_AS_Kicker
Joined: Nov 2008
Posts: 419 |
Shugswife - i have to ask - is that a pyrenees? We have an 11 year old - Ava Bear (ava's short for Avalanche). She/he's a beaut whatever the breed! mary cay
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Joined: Jan 2010
Posts: 49
Member
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Member
Joined: Jan 2010
Posts: 49 |
Hey Tinkerbell, I Just wanted to welcome you also. I thought i did yesturday but with the superbowl i got distracted by a hungry husband and my son Jake who is 8. I am a newer member aslo and just learning my way around on the forum. I don't do much online except to find info when needed and shop, i can do that and probably to much. I am glad i registered instead of just lurking cause everyone is very nice and the info you find has been very helpful. I have been suffering with AS for almost 20yrs and just diagnosed. I had to fire my old rheumy but am seeing a new one this week, thats if i don't get snowed in. We woke up to snow and expected to get up to 6 inches it wouldn't be so bad, but we live out in the sticks and on a very big hill, spring and summer it's beutiful and i also think the 1st and 2nd snow is beutiful but i want to see blue sky and bright sunshine to warm my aching bones. Gotta go finish some laundry while i have energy which has been awhile Take Care 
Laurie D
Dx:Interstial cystitis-2002 Fibro-2004 L5-S1 surgery-2006 AS-offically(finally)-Jan. 12,2010 RSD-misplaced cervical injection-2009
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Joined: Dec 2008
Posts: 5,231
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Joined: Dec 2008
Posts: 5,231 |
Thank you - I appreciate that answer because I'm still trying to learn what can cause the inflamed oesophagus and what options are open to me for fixing it. However, I followed up on fundoplication and it sounds pretty scary. It's certainly a major operation unless it's done laparoscopically.
I'm nervous about long term risks of oesophageal cancer because of the damage to my oesophagus and the fact that, even with meds and careful eating, the reflux continues to recur, causing more damage.
Wendy
Rheumatoid Arthritis Methotrexate, Celebrex, Plaquenil
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