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Joined: Apr 2007
Posts: 49
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Joined: Apr 2007
Posts: 49
hi everyone,
i've been following this thread with interest since i recently started ssz. i'm now at 1500 mg...and last night got hit with a bad headache. i also had 1 beer and this morning felt like a sick dog..(maybe it caused the headache?).

my blood work is ok so far...just feeling somewhat depressed about this choice of meds. the rheum. thinks my 'window' for treatment is closing and initally wanted me on a biologic which i said no to for many reasons. methotrexate scares me just as much.

molly, sorry to hear you had such a rough go on the ssz. i'm curious if you are on any meds now?

Joined: Jan 2004
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Very_Addicted_to_AS_Kickin
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Joined: Jan 2004
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Hi CaliQ. Yes, SSZ was a real bad scene for me. NEVER again. Got upto 5 weeks and that was that. Now left with tinnitus as residual side effect. Darn noisy it is to. whistle

Am on LDN, low dose Naltrexone. That's for spinal inflammation/pain, and also for gut problems. Sure does help with the spine, but, does not seem to help much with the gut. For breakthrough, I have Nexen, antiinflammatory and for pain
400mg Paracetamol / 20mg Codeine. I try to steer clear of these drugs, but do take the LDN. (Refer to past posts for LDN information.)

Not considered good to take Codeine *with LDN, knocks out the good effects of, so am particularly careful about taking.

Was on Celebrex and Tramalol. Celebrex exacerbated my LPRG/GERD and the Tram made me somewaht nauseaus.

All very tiresome.

Worst for me is early morning, well, any time morning - stiff as a board. Also, getting up after sitting down. Get stuck and sometimes just can't seem to move, like, putting one foot in front of the other, feel like my hips are going to give way under me! During the night, trying to turn over is horrible. Chest and SIs. Usually makes me cry out. Soon as I am comfortable, then can settle down, until I have to get up! Sometimes wake up after a few hours poor sleep, in pain.

Nothing set in concrete, most nights are a tad different to other nights. Such is AS.

Do take supplements, herbs and vits, various. Even more so now, as I have a DX of open angle glaucoma (the common one.) Am not treating with any meds, going to see how the alternatives work first, 'smile'.

OK. Wind this ere machine down for the night. Think I spend too much time on it, not good for the eyes.

Night all - take care

Molly C (France)
Keeping on Keeping on (as one does, innit?)


MollyC1i - Riding OutAS
Joined: Apr 2007
Posts: 49
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yikes molly, sounds like the ssz really put your through the wringer. what a nightmare!!

glad to hear the ldn is working well for your back.

Joined: Jan 2009
Posts: 487
SonjaZ Offline OP
Warrior_AS_Kicker
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Joined: Jan 2009
Posts: 487
Hey, I found some peppermint tea in an "imported foods" store. Costs an arm and a leg but im hoping it'll help. Also just had a blood test and should get the results next week (just before i go home!!! yay!!)

As for SSZ, I have no side effects apart from the loss of appetite.. which is kind of becoming normal and slowly coming back.. i think.. or im just used to it?

thanks for the responces,

I love this site!!!

Sonja xx


Sonja <img src="/ubbthreads/images/graemlins/smile.gif" alt="" />
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