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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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OP
Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
http://www.bixby.org/faq/tinnitus/prevent.html#drugs  If it aint one thing it's another! Tinnitus. Joining the dots - Sulfasalazine! Yes. The blasted culprit. Anyone else have tinnitus as a side effect of their taking our wee friend SSZ? Have been coping with this ever since taking the darn stuff, and only took it for 5 weeks, as I threw such wobblies - think I expressed most of the listed side effcts, and now this one, which won't go away! Whistling, zizzing, fizzing, badly tuned radio, feintly heard music (!), bells - oh the bells!! Have labelled it a new piece in honour of the League of Nations...as the cacaphony is worthy of Hoffnung - LARGE SIGH!! Go to bed with it, wake up with it - never ending background noise. AND, there's NO cure...
MollyC1i - Riding OutAS
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Joined: Jan 2010
Posts: 45
Member
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Member
Joined: Jan 2010
Posts: 45 |
Hi Molly. I empathise. It wasn't SSZ - have never taken it - but some 18 years ago or so (seems like it has always been there!) I got hit by tinnitis. It just began by its self! Never a moment of silence since. Fizzing, zizzing and whooshing but thankfully no bells. After a while it just becomes background to everything else. Sigh, we learn to live with so much crap!
Life is too good to let AS get you down. Kick it!
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Joined: Oct 2001
Posts: 1,904
Captain_AS_Kicker
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Captain_AS_Kicker
Joined: Oct 2001
Posts: 1,904 |
Wow...tis a long list. Is there a drug that does NOT cause Tinnitis...LOL I have Tinnitis in both ears for 30 some years and wondered what was the cause. I was on (Indocin [greater than 1%])for a lot of years.If I would have known that side effect... I stopped with the Indocin 20yrs ago .The tinnitis is still going strong.Must be permanent. It is like the ringing sound of a tuning fork.Kind of a metallic ringing.It never stops and is very loud when I get more tired. Oh the joys of drugs.Is that what they mean to get high on drugs...LOL Thank God that I am not using anything anynore. Ray 
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Joined: Sep 2009
Posts: 1,236
Copper_AS_Kicker
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Copper_AS_Kicker
Joined: Sep 2009
Posts: 1,236 |
I've had tinnitus for years. Tuning fork kind of sound all.the.time. I don't know when it started, but I think it might have been when I was on aspirin when I was 15 and had my first flare. Never went away.
Micki Mom to 9 Dx'ed Ocular Herpes, Sept. '08 Dx'ed AS May '09, suffering on and off since 1979 Dx'ed Non-Hodgkins Lymphoma May '08, relapse Oct '11
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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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OP
Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
Heigh guys, thanks for the responses. Asprin? Who would ever have thought! Well, it's been zizzling away, like a whistling kettle... Makes one doubly nervous about meds!
Have been checking on the glaucoma meds - help. The side effects are - right nasty. Like the one that gives you nice long and thick eye lashes, but, (ha) they grow like a worn out tooth brush and then 'can' grow inwards...eeeewwwww Or, how's about, darkening the pupil and giving one 'Panda' eyes - like one's been in a fisti-cuff? Elp. (And this was the med that the consultant scripted for me...nnnnoooooo!) As for the other side effects - exacerbates every single problem one has, including, wait for it...back pain! Shake one's head. (Yes, I know that one need not necessarily react at all, but, with my long standing record, just don't want to go there. Somehow. <LOL>)
So, have decided not to take any of the meds, will try alternative therapy. Supplements and vits. Spoke with my optomertrist today - he very kindly gave me a telephone consultation. Most helpful. Didn't rail at me, accepted where I was coming from. Told him I'd keep him advised, and, when over that way in the UK again, will call him for an appt. (He's terrific.) Am seeing the consultant here for a check-up on 9 April, so will know IF am on the right track - but, am keeping stumpth about being total non-compliant. <VBG>
Will keep the group advised as well.
MollyC1i - Riding OutAS
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Joined: Feb 2009
Posts: 702 Likes: 1
Decorated_AS_Kicker
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Decorated_AS_Kicker
Joined: Feb 2009
Posts: 702 Likes: 1 |
Hi Molly, Lyrica started mine. What's interesting is that it is worse at night. So much so, that when I turn my sound system on in the morning, it just about blows me away! At night, it is set to around 30, and in the morning, when the buzzing isn't as loud, I set it at 40 (0 is mega loud and starts the windows vibrating - love my home cinema). Now, if only I could stop the voices  James
I ache, therefore I am
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
That's quite a list. I've been on a couple of the NSAID type things, but not many of the others and none for any length of time. Was surprised to see several anti-depressants on there.
I don't get the fizzing and such, I hear a tone. It isn't constant, I just kind of become aware that I'm hearing it. Not sure what I can do about it, but I heard that it could be a sign that I will lose the hearing in the pitch range of the tone. Which would truly suck because so far I've identified 3 distinct pitches. Argh.
Warm hugs,
Kat
A life lived in fear is a life half lived. "Strictly Ballroom"
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Joined: Sep 2009
Posts: 1,236
Copper_AS_Kicker
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Copper_AS_Kicker
Joined: Sep 2009
Posts: 1,236 |
My tinnitus is much worse these days, so I came back to this thread. I was worried that the MTX might be doing it; and it might. However, I also found on that website suggestion that ultrasonic dental cleaning can cause damage by bone conduction. I had that type of cleaning done about 10 days ago. http://www.bixby.org/faq/tinnitus/discover.htmlIf it is a medication side effect, is tinnitus in and of itself a symptom over which to discontinue the drug? Or if it gets worse? I've never had the ringing as loud and annoying as I have the past week or so. I've even been concerned that it is interfering with my hearing, especially on my cell phone. Should I tell my rheumy and let him decide?
Last edited by mom2many; 03/17/10 12:51 AM.
Micki Mom to 9 Dx'ed Ocular Herpes, Sept. '08 Dx'ed AS May '09, suffering on and off since 1979 Dx'ed Non-Hodgkins Lymphoma May '08, relapse Oct '11
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Joined: Jul 2001
Posts: 3,334
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Joined: Jul 2001
Posts: 3,334 |
I had the very same thing. Stopped the Sulfa and things went back to normal.
Timo
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
i had pulsating tinnitus (where you hear your heart beat in your ears) when i was taking vioxx. turns out it was the edema causing it. vioxx caused edema, edema causes pulsating tinnitus. stopped the vioxx, edema went away, pulsating tinnitus went away. was also told during that time when they were trying to figure out why i had it that high blood pressure can also cause it. first thing they checked was my BP which was borderline high, but nothing severe enough to cause it, or so they thought. when i tried aleve for 1-2 weeks, had the same issues. pretty much all NSAIDs do this to me. but thankfully stopping the drugs, stops the symptoms, thank goodness!
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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