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Joined: Jul 2010
Posts: 4
New_Member
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OP
New_Member
Joined: Jul 2010
Posts: 4 |
What do any of you who are also on Humira think? What kind of results are you getting? Any pain relief?
I'm 21, female, Canadian, and have AS. I've been on Humira since January of this year and the only things I'm even vaguely noticing other than the shot itself are nausea and my worsening complexion.
AS, anemia, tendonitis, enthesitis.
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Joined: Jul 2009
Posts: 296
Third_Degree_AS_Kicker
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Third_Degree_AS_Kicker
Joined: Jul 2009
Posts: 296 |
my pain has gone down alot. when it gets close to my shot i'm in pain couple days before the shot. I really feel like i got my life back.
Life is short stop and smell the roses
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Joined: Jul 2010
Posts: 4
New_Member
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OP
New_Member
Joined: Jul 2010
Posts: 4 |
That's great! I had heard rumours that people can fully function on it, glad to hear they're true 
AS, anemia, tendonitis, enthesitis.
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Joined: May 2010
Posts: 1,279
Copper_AS_Kicker
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Copper_AS_Kicker
Joined: May 2010
Posts: 1,279 |
im not on biologics but last i knew, in general i thought they give it 3 months and if no improvement try something else. maybe theyve changed this but if they havent, maybe its time to try something else? good luck.
AS & Fibro. NSD + no sugar
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Joined: Jul 2009
Posts: 296
Third_Degree_AS_Kicker
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Third_Degree_AS_Kicker
Joined: Jul 2009
Posts: 296 |
it did take a few months to really get to working. Sorry your not getting any relief. there are other meds out there if humira not working for you just talk to your doc and hopefully they try something else to get the AS under control. Good luck
Life is short stop and smell the roses
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Joined: Apr 2010
Posts: 716
Decorated_AS_Kicker
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Decorated_AS_Kicker
Joined: Apr 2010
Posts: 716 |
I'm sorry Humira isn't or has not yet worked for you. In my case I noticed improvement hours after the shot. I feel good now. I have felt some SI joint pain at night. And like Sooner I feel some day time pains near the end of my two week cycle.
John
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Joined: Mar 2009
Posts: 232
Second_Degree_AS_Kicker
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Second_Degree_AS_Kicker
Joined: Mar 2009
Posts: 232 |
Hi there,
I was on Humira from Sept 09 to Feb '10 - got the flu or ? cant remember so I had to suspend it. I recall it took about 3 months to kick in and then the mobility was became better, I was able to step up steps one after the other - the hips were very hard to move.
I havent gone back to it and get very tired and if I do too much it knocks me out the next day, funny I dont know my limits until after...
I think it worked well for me and like the previous poster stated - I would feel the pain coming back just befor the next shot was due.
Now I'm trying to just remain active.\ and that helps.
Lucy
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Joined: Jul 2003
Posts: 2,962
Presidential_AS_Kicker
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Presidential_AS_Kicker
Joined: Jul 2003
Posts: 2,962 |
Hi EmilyM,
I'm sorry the Humira hasn't done anything positive for you after all this time. Being that the Humira hasn't been working for you since January, it shouldn't be a problem to tell your doctor that you need something else. I hope you can find something that works better for you soon.
Take care.
James
HLA-B27+, JRA diagnosis in 1981, re-diagnosed as AS in 1988. Also iritis, colitis, and psoriasis. NSD + low carb helps me. My health makes it hard for me to post in a timely way.
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Joined: Nov 2001
Posts: 18,186 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,186 Likes: 7 |
Hi there and welcome to KA. As I understand it, you should have felt more positive results by now. Do you have the option to try Remicade, Simponi or Enbrel? One of those might work better for you. Hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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Joined: Mar 2010
Posts: 132
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Mar 2010
Posts: 132 |
Hi Em
I was on Humira for 4 months and it did absolutely nothing. I kept waiting for the " whiz bang ring the bells whoohoo effect"...but nothing. I switched to remicade and noticed a difference in 24 hrs.
Humira worked for my daughter and remicade didn't.
Don't be afraid to ask try another biologic.
Hope you have success soon
Noelene
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