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Joined: Jan 2008
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Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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26 degrees but no wind so very nice walk, 1.5 miles, 30 minutes, with hubby! today i was the one dragging him out! the buddy system is a good system!

when i walk, i feel like the person in that phone commercial with all those people following along, where i have all of you there with me instead! cheerleader



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Jun 2010
Posts: 3,865
EricaK Offline OP
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Posts: 3,865
Originally Posted By: Sue22
26 degrees


snowflake1 Brrrrrrr.... snowflake1

Good job though cheerleader

I wouldn't have done it. no I am a weather sissy. yes

Go TEAM! clap


ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009

Movin' it so I don't lose it!

Joined: Jun 2010
Posts: 3,865
EricaK Offline OP
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Originally Posted By: Sue22
i feel the same way. you all are an inspiration to me. and my appreciations to erica as well for starting this! best exercise "team" i have ever been a part of! smile

Thank you. blush I love you people! You cannot imagine the depths you dragged me out of last summer. I will be forever grateful. smile


ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009

Movin' it so I don't lose it!

Joined: Jun 2010
Posts: 3,865
EricaK Offline OP
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Originally Posted By: LATH
That is a pass named "Hell For Sure Pass" at 11,297 ft that we crossed on our way to Mount Goddard in 1994.


Above Bishop below Tahoe? Dangit I really really really miss California. ooo


ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009

Movin' it so I don't lose it!

Joined: Sep 2001
Posts: 7,427
Addicted_to_AS_Kickin
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hi lath!
just up and moving around with my internet...yes...try the yoga out! rainbow

it is indeed awesome when you have family and friends to support you. hubby knew how bad i've been for years. he worried about my back when i met him 18+ yrs ago and back then i didnt think twice about it. yet he is the one that encouraged me to try out krav. he thought it would be a great outlet for me and allow me to rid my stress and pace myself. it was the best idea he ever gave me. heart my friends worried alot about me. they were stunned that i could do it. but when 2 of my friends joined they realized how therapeutic it is for me.

i will admit i was completely frozen with fear when i tried out the free class. i thought surely everyone would notice my boney back and rolled shoulders and gait....but they didnt. and they were very kind and allowed me to work at my pace. as long as we never stopped. and never gave up...and i havent. i refuse to let this disease dictate my life. i love my life. i love it more since having AS. i took it for granted for so long. when i got sick i realized how special it truly was and i have a zest for life and all it's challenges. roll i wake up and am still a bony rigid mess. i'm hobbling by 2-3 pm and go downhill from there. BUT every day i wake up and tuck and roll out of bed is an accomplishment within itself! cheerleader and with all of the support here...we can go nowhere else but up! clap one hobbly step at a time...but it's a step nonetheless! laugh2
take care friend!

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Posts: 7,427
Addicted_to_AS_Kickin
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i had to laugh when i read this post erika!! laugh2 i wander off task to internet more than i should! doh

i've contemplated doing strength training. i asked a couple of the instructers and they said i could modify to the lowest weight. in the km bag it's 1 lbs that i use. you would think it's nothing but its helped me immensely. i actually have definition in my back and shoulders that i NEVER achieved when i was healthy and using TEN lb weights and the gym regularly! cheerleader we also use resistance bands. i've found those to be VERY useful for people with arthritis. because you can work around it. you can adjust the tension when doing an arm curl either by stepping on the strap and doing one armed curls and if it's too much just loosen your band on your foot and so forth. if you would like some tips on them i know PLENTY with the resistance bands!! you can do alot!!! and they wont hurt you!
gooo erika!!! rainbow

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Addicted_to_AS_Kickin
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Oh Erika...I've done that before. I guess it's the type of walk. Sometimes I can walk in the mall and be in bed flat out in pain then if i went to km class. if there's hills..eek...i will be whimpering and hobbling back and out of commission for a week in least!! take care erika and keep us posted!! hugss

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Addicted_to_AS_Kickin
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Thanks Sue.. we all are finding better ways to battle this AS monkey on our back...I keep knocking it off...but I wake up and there it is again....refuse to give in though! cheerleader

Joined: Apr 2010
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Decorated_AS_Kicker
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Originally Posted By: ladybuggie
i will admit i was completely frozen with fear when i tried out the free class. i thought surely everyone would notice my boney back and rolled shoulders and gait....but they didnt. and they were very kind and allowed me to work at my pace. as long as we never stopped. and never gave up...and i havent. i refuse to let this disease dictate my life. i love my life. i love it more since having AS. i took it for granted for so long. when i got sick i realized how special it truly was and i have a zest for life and all it's challenges. roll i wake up and am still a bony rigid mess. i'm hobbling by 2-3 pm and go downhill from there. BUT every day i wake up and tuck and roll out of bed is an accomplishment within itself! cheerleader and with all of the support here...we can go nowhere else but up! clap one hobbly step at a time...but it's a step nonetheless! laugh2
take care friend!
That has got to be the theme statement for all of us! It sure has an impact on me. Thank you my friend.


John
Joined: Jan 2008
Posts: 21,346
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Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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Likes: 1
Originally Posted By: ladybuggie
hi lath!
just up and moving around with my internet...yes...try the yoga out! rainbow

it is indeed awesome when you have family and friends to support you. hubby knew how bad i've been for years. he worried about my back when i met him 18+ yrs ago and back then i didnt think twice about it. yet he is the one that encouraged me to try out krav. he thought it would be a great outlet for me and allow me to rid my stress and pace myself. it was the best idea he ever gave me. heart my friends worried alot about me. they were stunned that i could do it. but when 2 of my friends joined they realized how therapeutic it is for me.

i will admit i was completely frozen with fear when i tried out the free class. i thought surely everyone would notice my boney back and rolled shoulders and gait....but they didnt. and they were very kind and allowed me to work at my pace. as long as we never stopped. and never gave up...and i havent. i refuse to let this disease dictate my life. i love my life. i love it more since having AS. i took it for granted for so long. when i got sick i realized how special it truly was and i have a zest for life and all it's challenges. roll i wake up and am still a bony rigid mess. i'm hobbling by 2-3 pm and go downhill from there. BUT every day i wake up and tuck and roll out of bed is an accomplishment within itself! cheerleader and with all of the support here...we can go nowhere else but up! clap one hobbly step at a time...but it's a step nonetheless! laugh2
take care friend!


what a great positive post! cheerleader

thanks! heart



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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