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Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
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OP
Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865 |
i forget this disease doesnt let me be even close to the fitness level i had long long ago  ~~~~ i sucked it up but it hurt like a son of a gun. i feel like ive worked so hard and if i dont pass the test.. Good job sticking with the KM!  I hope it's not doing any damage to you joints.  ??? 
ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009
Movin' it so I don't lose it!
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Joined: Sep 2001
Posts: 7,427
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 7,427 |
hi erika! no damage to the joints. still as bad as they were when i first started i suppose!  i guess i am just feeling more exhausted with the hubby out of town at training and 3 gremlins on summer vacation and trying to prep for test at the same time is overwhelming. this humidity drains me and hurts my joints so much. this past week my hands have felt like they are full of fluid about to burst with pressure. good job on the swimming erika!! 
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Joined: Jan 2008
Posts: 21,346 Likes: 1
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 1 |
i think sometimes people forget how much "just inflammation" can hurt...... 
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
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OP
Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865 |
I have done absolutely zero exercise today and I'm not planning on doing any. I'm in a crabby mood and nothing is motivating me to move. So there. I'm sure I'll regret this decision tomorrow morning when I wake up stiffer than usual. Hmmm... well, maybe I'll go tread water in our condo pool later. I'll let you know what happens. 
ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009
Movin' it so I don't lose it!
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Joined: Apr 2009
Posts: 1,576
Gold_AS_Kicker
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Gold_AS_Kicker
Joined: Apr 2009
Posts: 1,576 |
Erika,
Ditto ditto round the board. Wake up and have to slowly move my hands, spine, neck, knees, feet etc. Just so sick of it too. I ate really carefully the last two days just so I could take my cub scouts to day camp today. Had to have another leader drive my SUV to transport them all. Then the other leader had to carry my lawn chair and set it up and take it down for me all day. Why do I even try? Tonight went to a barbecue and ate a hamburger ON A freakin' BUN because I was just so ticked off at life. Curse you evil spondymonster.
It makes me feel better to co-miserate. What would I do without this place?
**Walked 2 miles (felt like 80) taking cub scouts all around stations at day camp today. I have the burned forehead and swollen toes to prove it.**
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Joined: Sep 2001
Posts: 2,192
Major_AS_Kicker
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Major_AS_Kicker
Joined: Sep 2001
Posts: 2,192 |
Today's run 6.29 miles 1 hour and 2 minutes. I am with you Erica, and Donnette, I am just so tired of being sick all the time. I think part of it may be the MS medication I take. It says it makes you sick for 24 hours, but now I don't get as sick it just last several days now. I would really like to get a good nights sleep.
Steve Orchard, Running from AS & MS
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Joined: Jan 2008
Posts: 21,346 Likes: 1
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 1 |
everybody. i was telling the chiro this morning that if i seemed a bit grumpy, it was because i woke up especially "physically grumpy". told my husband this morning that one of the excuses i have for staying up so late is that if i'm not in a flare or don't have a particularly hard day, i feel much better in the second half of the day as i do in the first half of the day, so i like to make my second half longer! some mornings / days are just harder than others! last night, didn't get home til 8:45 pm, not sure how much time i had for a walk. but love this time of year! was still able to walk 1.5 miles, 30 minutes before it got dark. love that it doesn't get really dark until after 9:30 pm!
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Sep 2001
Posts: 7,427
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 7,427 |
Hello friends... Thought I would share my little bit of news today... I passed my KM level I test today!! I was so exhausted this week with this horrible heat that I didnt think I would make it...but I went for it. I am banged up but I now have my little yellow belt and am a KM leve II student! Wahoo!  AS can kick me around, swell up my joints, toss flares at me, make me walk like an old buggie, and pray for the pain to stop...but I refuse to let it stop me from living my life...and pffft to you AS monster...I kicked your AS today! lol  GOOOO team!!
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Joined: Sep 2001
Posts: 2,192
Major_AS_Kicker
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Major_AS_Kicker
Joined: Sep 2001
Posts: 2,192 |
Good job Bug, no one should mess with you
Steve Orchard, Running from AS & MS
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Joined: Sep 2001
Posts: 2,192
Major_AS_Kicker
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Major_AS_Kicker
Joined: Sep 2001
Posts: 2,192 |
Today's run 13.1miles. Time 2 hours 10 minutes 26 seconds. Ran up American Fork canyon, and back down. Saw a deer along the way, glad I didn't see any bears.
Steve Orchard, Running from AS & MS
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Uveitis
by Missalicia - 05/25/22 05:38 AM
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