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Nov 2nd, 2025
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If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
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Joined: Sep 2001
Posts: 6,248 Likes: 5
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 6,248 Likes: 5 |
ON a particularly disgruntled day when all was hurting and a total stranger happened to be about the tneth person to ask me that day, what was wrong with me,
I responded to that rather tough and large looking soul, Did you ever hop on your motorcycle and get 'er up to about 85-90 and just lose control and smash as you laid it down into a brick wall. He obviously answered NO. I said I haven't either but I'm sure it would feel a slight bit better than how I feel. Never told him I had AS and it accurately described how I felt that day.
The best mental image and explanation for me since my AS is "classic" male progression, if there is such a thing. That is it started in my hips and has ascended my spine and into shoulders and neck, is that there is a thorn filled vine with python like skills of contraction growing up my spine. The thorns are always there but on the day which that vine contracts in a python like convulsion. My eyes pop.
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Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
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OP
Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865 |
I have actually thrown out my neck from sneezing so hard. Me...blowdryer 
ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009
Movin' it so I don't lose it!
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Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
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OP
Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865 |
The thorns are always there but on the day which that vine contracts in a python like convulsion. My eyes pop. I'm sorry. 
ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009
Movin' it so I don't lose it!
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Joined: Nov 2008
Posts: 1,970
Captain_AS_Kicker
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Captain_AS_Kicker
Joined: Nov 2008
Posts: 1,970 |
I have actually thrown out my neck from sneezing so hard. Me...blowdryer At least you could apply heat to your neck right away!!!
I can not defeat you but I will not let you win
Jeff
Degenrative disc disease 2005
AS 2008 HLA-B27-
Fibromyalgia 2010
Disability 2012
Back to work part time 2013
Enbrel, Cymbalta,Oxycodone, blah blah blah blah
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Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
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OP
Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865 |
I have actually thrown out my neck from sneezing so hard. Me...blowdryer At least you could apply heat to your neck right away!!! Right? That was in 1995 and that NEVER occurred to me until you said it! 
ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009
Movin' it so I don't lose it!
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Joined: Oct 2008
Posts: 895
Master_AS_Kicker
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Master_AS_Kicker
Joined: Oct 2008
Posts: 895 |
At times over the past year, it's been like having someone walking behind me and stabbing me between the shoulder blades everytime I make a quick movement. And if I sneeze or cough, that person runs the knife all the way through my ribs.
AS symptoms started 1991. Official dx in 2006 with HLA-B27+, fused SIJ, bone spurs in back, extreme rib/hip pain, and other family with SpA. Started Enbrel in 2006 with good results, but stopped in 2010 due to nerve damage (MS) from it. Getting good results with no-starch diet since 2011.
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Joined: Nov 2008
Posts: 1,970
Captain_AS_Kicker
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Captain_AS_Kicker
Joined: Nov 2008
Posts: 1,970 |
I have actually thrown out my neck from sneezing so hard. Me...blowdryer At least you could apply heat to your neck right away!!! Right? That was in 1995 and that NEVER occurred to me until you said it! 
I can not defeat you but I will not let you win
Jeff
Degenrative disc disease 2005
AS 2008 HLA-B27-
Fibromyalgia 2010
Disability 2012
Back to work part time 2013
Enbrel, Cymbalta,Oxycodone, blah blah blah blah
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Joined: Apr 2010
Posts: 6
New_Member
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New_Member
Joined: Apr 2010
Posts: 6 |
I have actually thrown out my neck from sneezing so hard. Me...blowdryer ... And if I sneeze or cough, that person runs the knife all the way through my ribs. No Way! I thought that I was the only person in the world that had (often and severely) injured themself just by sneezing! People tease me all the time because I will brace myself like an earthquake victim,if I feel a sneeze brewing!  No joke-when I read this, I let out one of those "throw your head back/laugh out loud" and scare everybody in the room laughs. Now they're all looking at me crazy and want to know what could possibly be that funny, But I told them it was an "AS" thing...they wouldn't understand. hee hee
Last edited by Gulabo; 10/18/11 02:24 AM. Reason: forgot to quote gbash too
"You want,if possible-and there is no more insane "if possible"-to abolish suffering. And we? It really seems that we would rather have it higher and worse than ever. Well-being as you understand it-that is no goal,that seems to us an end,a state that soon makes man ridiculous and contemptible-that makes his destruction desirable. The discipline of suffering,of great suffering-do you not know that only this discipline has created all enhancements of man so far?" ~ ~Friedrick Nietzsche~
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Joined: May 2011
Posts: 41
Member
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Member
Joined: May 2011
Posts: 41 |
I'm very used to the large-hoofed-animal-kicking-me-in-the-butt feeling and just recently got to know the anaconda-squeezing-my-innards! The steel-rod-in-the-back is the one i have the hardest finding words for! I'm so thankful all of you understand..
Bikram yoga, New to NSD, stretching
HLA-B27 Negative
"Life is not about waiting for the storms to pass. It's about learning how to dance in the rain."
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Joined: Jan 2011
Posts: 320
Fourth_Degree_AS_Kicker
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Fourth_Degree_AS_Kicker
Joined: Jan 2011
Posts: 320 |
It's like having sun burn and having to ware a shirt made out of sand paper.Like hot water running down your back and legs.
Tommy
Live Relax Laugh
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