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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
Pencil and note book with you to the hearings - might want to make some quick notes to refer to when it comes to your turn to state your own case -
MollyC1i - Riding OutAS
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Hi Alida, I appreciate the help on organizing and preparing...it's really helpful right now, I've started the countdown and I'm starting to get stressed, thinking that something is going to be overlooked...I don't know what I'd do without you & Molly... ...I'd probably forget my own head on the counter on the way out... I hope things go with with your M-I-L...at first I was thinking, M-I-L..you screaming...K ...MILK!!! , then I got it... Thanks again, Alida... Michelle
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Molly, when I go to my disability hearing, should I just inform them of the cancer Dx when it's my turn to speak? ...I don't think they'll have these most recent medical reports in their files yet?? ...Notebook & pen...got it!! I appreciate you, I was just telling Alida how much I appreciate all of the preparation/organizational help... Thanks Molly... Michelle
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
Yes. And, ust to reinforce your health position, tell em, that in conjunction with all your other health problems : ankylosing Spondylitis; kidney N.; MS; TOS; Bursitis (pull the big ones by name)- and several other problems, you have just received the devastating news that you now have cancer of... (and IF you also have osteonecrosis of the jaw? then throw that in as well). So, remind em first of the biggies that they should have on record for you, then, throw in the boulder. Floor em. Bring a bunch of paper hankies with you, but don't overplay. 'Pathetic' but very 'brave' lady.
Strong thoughts gal (((HUGS)))
MollyC1i - Riding OutAS
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
That sounds like a plan... They still have no idea what has caused the jawbone loss, they are doing a PET scan, so no news as of yet on that but I can bring them the Cancer Dx, thanks again, Molly...
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
Michelle - You can allude to the osteonecrosis of the jaw, bring that one up like as an afterthought? Like, 'Oh, and this has also a been discovered, but has yet to be investigated?" Slip it in, but like, you can't even bear to think about it.
It won't be over the top, it is what it is...to be discovered, and resolved.
Strength to your javelin arm...an Olympic throw -
MollyC1i - Riding OutAS
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Joined: Jul 2010
Posts: 1,191
Steel_AS_Kicker
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Steel_AS_Kicker
Joined: Jul 2010
Posts: 1,191 |
Michelle, You have so much going on, I can't believe it. I am still thinking about you, and hoping and praying for the best.Hope it works in your favor. I have no advice to offer,but I hope it goes well. love,sheri
Diet change has improved my RA. I feel best eating raw veggies and some fruits and avoiding grains, sugars, nightshades, beans and dairy. Sed rate dropped from 65 to 19, but it took over a year. www.fatsickandnearlydead.com excess fat/oils = pain for me recipes for raw food on Youtube "raw food romance" and "healing josephine" Josephine is in remission from RA after two years by change diet/exercise
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
I think that's a good way to present it...the truth is though, I'm going to have to also tell them that my docs are thinking that something more sinister may be going on in the bones... There was discussion yesterday that I may have 2 Primarys... ...and the fever is a burnin'!!! I feel like I'm on the sun...no, I take that back I feel like I AM the sun!!! Thanks for your help in this, Molly...you're the best!!! Michelle
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Hi Sheri...yes, things tend to be like that in my life, so when things are good, they're great!! I really appreciate all of the well wishes from you, big, big hugs, my friend... Michelle
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Sep 2001
Posts: 8,397
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 8,397 |
Dearest Michelle, I think some of this could be the meds. When I have medicated with Oxycontin, and for a few brief hours, am pain free, I will start to sting and be flushed, then the anxiousness sets in. I am not comparing my illness to yours.... but I sure would ask for some kind of relief.. for the hot burning sensation. Does the burning run bone deep? All of us are praying for you. and we send our love and best wishes to you. Please, if you care to, explain what to primary's means.
I keep the New Covenant, when I fail....I am pulled back into place by HIM.
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