Kickas.org Forums Treatments, Drugs and Alternatives NSD and diet-related; anyone feel worse before getting better?

You have a family so i can understand that for your husband priorities are much different then mine .. What is making me happy is that you are with him even in such conditions.. your husband is really lucky.. hope i get someone like you..

and the answer to your question is yes... i have been in immense pain for more then a year ,.. every morning i had to crawl to have some water. sleeping with door open so that every morning my friends can come and lift me up the bed,.. i have been like this for almost a year. everyday doctors use to pick me up and take me to physiotherapy centers..it took almost 2 yrs to diagnose till then i had this life.. Above all this i had no one with me because i was about 200 miles away from parents to chase my dream of getting into best college of india that i couldn't get because of this damn AS and unlike your lucky husband ,, my beloved broke up with me after 6 yr of relation because she knew the future of this disease.. since then i have never been in relation ,neither i find shoulders for support nor i let AS ruin my dreams... life is very tough for me also but still i manage to keep a smile always..

I think everyone is taking me wrong ... i do not mean that pain is not responsible for the sufferings.. and you are forgetting that i am also an AS patient from 5 years and even i suffer from morning pain and stiffness. Even i have had experienced daily crawling to bathroom because of pain.. You talk of living like dying daily but i have even tried it under frustration...
Its not pain .. by this i meant that we all suffer from a disease that is painful and it is obviously responsible for our sufferings.. but when it goes in head then its not just pain that bothers more than that its the mental state of person that bothers.. just think that due to some reasons you have the same pain that AS gives you but you dont have AS , you dont have a disease thats not curable.. At that time would you use these words READY TO DIE ON DAILY BASIS..
I am sorry if i am sound a little loud... I have the same torturous pain that you have but last week i climbed a mountain and was in icy river doing rafting and swimming until my fingers were almost numb.. I did all that in same pain that you have ..that everyone in this community have.. But i dont let it spoil my life quality.. I am recommended daily meds but i do not take them. I am 21 and i am on medicines from the day i was born.. You are having AS but i am having many other diseases that give me even more pain and mental agony .. I am sorry again if you feel offended ,i am just explaining myself what i really meant.
http://mypartnerspondylitis.blogspot.in/2012/06/my-rocking-rafting-experience.html
http://mypartnerspondylitis.blogspot.in/2012/06/i-will-win.html
http://mypartnerspondylitis.blogspot.in/2012/05/my-experience-with-ankylosing.html
I request you to read these posts and everyone who thinks that i am not suffering from same pain that you have... you will realise i am suffering same pain ... and why i say that AS should not reach your head... and i will Pray that you always have 10 out of 10 quality life..

off topic:
different people, different goals, different choices. quality of life does not mean the same thing to all of us.

on topic:
i believe you feel worse because enbrel leaves your system.

if you plan on NSD you should post your meals, maybe some of us could advice.

That is the most important! Take one day at a time and keep on Kicking and put a smile on your face. I think some gal will see that some day and you will have a lucky partner as well.

How you treat your AS will always be a personal decision, there are many options available and it is important to learn what you can to make informed decisions.

I changed to No Starch when medications caught up with my liver and I had to come off of them... otherwise i doubt I ever would have tried diet. I followed in my fathers footsteps who also had AS... did my stretchs each day and took my meds. That worked fairly well in having some decent quality of life.

Dietery changes can be difficult and there is an adjustment... it is not easy. I hardly cooked at all prior... always a Lean Cuisine for supper, breakfast cereal in morning and junk food in between being single male. So transition for me was big learning experience.

However... now 10 years later, can say I do not miss starchy foods. I do prefer having what I consider a better quality of life than what i think I would have on meds that would be available to me. But that is my personal decision.

Keep on kicking and keep on smiling... do not let AS keep you down. If you need a pep talk on a day you are not feeling too good, this is the place to come for some support.

Take care,

Tim

Hey no apology needed...I wasn't offended. Just puzzled at your reasoning. If anything I should apologize. I mistakenly made the assumption that your AS symptoms must not have been very bad if you could have the attitude you have. I know when my husband's AS was severe and he couldn't walk or work and could barely function all day every day he certainly found it difficult to maintain such a positive outlook as you do - so good on you for that .

I guess we just see things differently much as I'm all for a positive attitude. You say just live with the pain without lamenting. I say why live with the pain when something can be done about it - whether by dietary or medication means?

Each to their own
All the best to you.

Talk to John or myself or many others and you may find that eating nothing is very very helpful.
Fasting, mono-diets and restricted diets/regimes produce GIT results. enough said
Ted