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#477180 09/20/12 01:42 AM
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Has smoking pot helped anybody with there AS

tmac #477189 09/20/12 04:08 AM
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tmac #477535 09/28/12 01:31 PM
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There used to be an KickAS member (no names - even if I could remember it) who managed to get it legally prescribed (Canada), and he said it helped his pain.

However, ironically enough, mental illness/paranoia is a known side effect, and after a while, he started to think this site was using all his posts to write a book.... He became quite "aggressive", and actually got banned.

James


I ache, therefore I am

tmac #477539 09/28/12 03:49 PM
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I'd agree that it will cause some paranoia, especially with newbies, But id have to strongly disagree with the "Mental illnes".. Not a side effect...


HLA-B27 Positive 2012.. Have always had low back pain. Disease rapidly infested itself after an accute Weight lifting accident..

Pain from SI joints all the way through neck. Rib cage extreamly tender
tmac #478691 10/20/12 03:48 PM
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Lots of long term effects - including paranoia and other mental illness (and isn't paranoia actually a form of mental illness, Bodsquad??), but also the way frequent, regular, long term use can sap motivation and initiative. BUT not so different from some of the slightly mind-numbing effects of either chronic pain, or of long term use of pain killing drugs. Its all a bit of a balance and something you need to weight up for yourself, especially if you can't get access to a legal version of it where you live.

Years ago I was involved in trying to research the long term impact of marijuana use as part of evidence based guidelines for primary mental health care, and it was quite obvious how little academic research had been done - possibly partly because of the difficulties in monitoring what was still a totally illegal drug then. But what was available clearly showed that it did have a significant impact on cognitive function in young folk - so if you are under 25 (i.e. while brain cells are still actively forming) then probably not a good idea to use marijuana regularly (though enough alcohol will also do the same damage).

Personally MM isn't for me, and I'd put LDN much higher up on the list of possibles, but its just another of those trade-off decisions where we have to balance positive and negative.

tmac #478995 10/25/12 10:53 PM
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Cemc-
If you smoke pot you're not going to go bat-[*bleep*] crazy.. Thats more of what I was getting at..

But yes everyone is different and no matter what medication you choose it should be carefully thought out...


HLA-B27 Positive 2012.. Have always had low back pain. Disease rapidly infested itself after an accute Weight lifting accident..

Pain from SI joints all the way through neck. Rib cage extreamly tender
tmac #480148 11/19/12 09:53 PM
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On a medical stand point, pot has been shown to stimulate natural production of anti TNF (a more recent disease modifying treatment for AS).

However, as you may be aware, your lungs are precious in this disease as you may reach a stage where your ribs become tighter, and so as not to remain breathless you should avoid all smoking products to maintain your lung function. Also, I'm guessing your mixing with tobacco, which through a variety of pathways may increase inflammation and will make any exercise more difficult and less productive.

The take home message here is pot is probably a bad idea if you have AS, it may help with pain in the short term, but it may affect your long term outcome in a similar way to smoking cigarettes.


UK Med Student,
AS 2013, symptoms since 2010
Etanercept 2013
tmac #486702 04/05/13 09:44 AM
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I'm on nabilone (synthetic, pill form of mj). I take it mainly to control nausea, but it does help the pain a little bit. I think it could be a bit more difficult to get a prescription in this country (Canada) for medical marijuana, but that could change.

tmac #486708 04/05/13 02:19 PM
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Hugs, Megan. Thinking of you.

:o)
Possi




Possi
*********************************************************

RUN WHEN YOU CAN,
WALK IF YOU HAVE TO,
CRAWL IF YOU MUST,
JUST NEVER EVER GIVE UP!



"A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS."

"A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."

Megan #486752 04/06/13 04:37 AM
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Originally Posted By: Megan
I'm on nabilone (synthetic, pill form of mj). I take it mainly to control nausea, but it does help the pain a little bit. I think it could be a bit more difficult to get a prescription in this country (Canada) for medical marijuana, but that could change.


After recommending MJ for the nausea, I felt guilty about trying to recommend something so similar for something so complex. But now seeing, looks like I wasn't so far off. Hoping that is helping at least a little.



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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