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#477996 10/06/12 05:25 PM
Joined: Dec 2003
Posts: 1,368
Bronze_AS_Kicker
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Hi

How many of us ever have a truly "Good Morning " . Does the biologics take away the morning stiffness. I wake frequently in the night, and then when mornng comes, I always get up and am greeted with a "Good Morning" and I say the same thing back. I remember one time being in the hospital because of such a bad flare, and my rheumy greeted me in the morning, and he asked me "Is it really a Good Morning" I never forgot that. I felt that he really undestands some of the stiffness and back pain, most of us have in the mornings. I then found out he had a back injury fro skiing, and had surgery, and had lots of his on pain. I hate to say it but he has been the best rheumy because of that insight into the pain.

Hugs.
Janet

Last edited by jpinperth; 10/06/12 05:26 PM.
jpinperth #478002 10/06/12 06:15 PM
Joined: Jan 2010
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I've completely forgotten what "good morning" is like. I hate mornings. I really struggle with making myself move, and have to force myself to. I keep trying to tell myself that the quicker I start moving the easier it is going to be, but that doesn't really make those first few movements any better. Even just trying to grip my bedclothes to lift them off me is hard. But, its not much moving before I'm feeling significantly better, so I need to keep remembering that (though i do still stay fairly stiff for usually about an hour.

Yes, that kind of rheumie who understands is great. So different from when I was in the neurology ward and they had no clue at all about why I found it so incredibly difficult to move in the mornings.

jpinperth #478012 10/06/12 08:51 PM
Joined: Jan 2008
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Very_Addicted_to_AS_Kickin
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When I'm on my pred tapers, those are excellent mornings smile

otherwise i try to get myself into the shower as soon as I can, that helps a lot.

i guess i'm lucky to have doctors now that can empathize without having comparable experiences.

Last edited by Sue22; 10/06/12 08:51 PM.


sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
jpinperth #478022 10/07/12 01:08 AM
Joined: Feb 2011
Posts: 1,968
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Captain_AS_Kicker
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Posts: 1,968
Sorry Janet, biologics help but still wake up a little stiff but a hot bath usually unstiffens me quicker then anything. My Rheumatologist hasn't a clue how painful anything is. Told me my Fibro pain was probably because my liver function test were high! What?


Pea
Diagnosed with A.S. 29 year's ago.
Diagnosed with Fibro 10 year's ago.
Remicade, Intrathecal Pain Pump 2013
jpinperth #478034 10/07/12 05:26 AM
Joined: Oct 2012
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Mornings are the worst, no doubt,,,,,although cymbalta really helps me,,,,,,,,it turned my mornings from miserable, unable to get out of bed, agonizing and tearful to stiff and really uncomfortable,,,,,I'll take it.

usually I get up and head for the bathroom,,,,,,then I plump up a bunch of pillows and sit for half an hour or so before I start stretching,,,,,,

then a hot shower,,,,,,,,

then I might be ready for the day,,,,IF I'm not flaring.

I've always been terrified of a fire at 4am,,,,,,sometimes I wonder if I could move fast enough to save my own life,,,,,,,I think NOW I could, if I had to,,,,,,but not before cymbalta.

jpinperth #478049 10/07/12 03:45 PM
Joined: Feb 2004
Posts: 854
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Good Question! After my hot shower and stretches, it really is a good morning. I love your insight, and yes, when someone else has suffered they are able to truly understand our pain.


Samantha

A.S.
Fibro
Undiagnosed Chronic Fatigue

Live like nobody is watching, Love until you can't and Travel to the moon & back
jpinperth #478060 10/07/12 10:10 PM
Joined: Oct 2008
Posts: 895
Master_AS_Kicker
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Posts: 895
Since I started NSD, mornings are not too bad. I'm a bit stiff, but I'm not sore like I used to be. I hot shower and I'm good to go. When I was able to take a biologic, it was like I never had AS.

--Greg


AS symptoms started 1991. Official dx in 2006 with HLA-B27+, fused SIJ, bone spurs in back, extreme rib/hip pain, and other family with SpA. Started Enbrel in 2006 with good results, but stopped in 2010 due to nerve damage (MS) from it. Getting good results with no-starch diet since 2011.
jpinperth #478117 10/09/12 02:40 PM
Joined: Sep 2012
Posts: 8
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Posts: 8
As I have mentioned before in another discussion, I am new to this AS thing. I am starting to think that I have had it longer than I have thought before. I am getting worse and I am really starting to hate mornings. They seem to be getting worse. I am turning thirty five this year and should not be feeling like this already. I have an eight year boy, a five year old girl, and a wife that needs my help in the morning. As you can imagine, mornings in the Key household get hectic. I bear with it but it is getting harder each day. I like to take really hot showers at night before bed. I am working on an MBA so I only work part-time stocking shelves at a grocery store in the evenings, a physically demanding job. The job is starting to bother me and need the hot showers at night. Apparently, I need hot showers in the mornings, as well. The mornings after I work are especially difficult. As I have mentioned before, I do not have a rheumy yet and only take ibuprofen (self-treating at this time). I use to be a morning person. I use to be in the military and I am a veteran so I use to love mornings. I do not have “Good Mornings” anymore.


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