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Joined: Oct 2012
Posts: 43
Member
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OP
Member
Joined: Oct 2012
Posts: 43 |
so it's a half hour until I leave for my appt with my rheumy,,,,,,a month ago they took blood for several tests, including the HLA-B27 test and Xrays of my SI joint,,,,,
he told me the chances of my having it are pretty good,,,my father has it,,,,,
I don't know whether to hope he finds it (it's been 20 years of being misdiagnosed and told I'm nuts),,,,,,
or hope he doesn't,,,,,,
I think I'm having a panic attack,,,,,
sorry, just had to whine a minute,,,,4pm is my appt and I have to leave in just over half an hour.
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Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
Thinking of you Holly. I thought of you when I was in Wesley Chapel a few weeks ago. :o)
Let us know what you find out.
Hugs.
Possi
![[Linked Image]](https://www.kickas.org/images/flowers/Smilingsun.gif) Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
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Joined: Oct 2012
Posts: 43
Member
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OP
Member
Joined: Oct 2012
Posts: 43 |
spondylosis,,,,,,,,,but no fusing,,,,,
HLA-B27 negative though,,,,,,
I have arthritis of my spine, but not AS,,,,,significant narrowing of the spine causing my neuro symptoms.
I also have degenerative disc disease and fibromyalgia,,,,,
he's increasing my arthritis meds.
at least I'm not crazy.
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Joined: Feb 2010
Posts: 1,127
Steel_AS_Kicker
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Steel_AS_Kicker
Joined: Feb 2010
Posts: 1,127 |
Yay for not being crazy.
Not good about the other stuff but at least you will be getting the right treatment and not just treated as a mental patient. I think most of us have been there done that and it's not nice so yeah happy you now know that there is something "real" that is wrong.
All the best with treating your conditions.
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Joined: Jan 2012
Posts: 14
New_Member
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New_Member
Joined: Jan 2012
Posts: 14 |
Glad that you finally have some answers. Even though we would rather not have anything wrong with us, it is comforting to know that there is an explanation for our symptoms.
Kim (30) - Dx'd with AS - Nov. 2011. (HLA B27+, sacroiliitis on MRI, peripheral and axial symptoms, enthesitis, and iritis)
Current treatment: Too many medications to mention. Now trying going a more natural route...NSD and exercise!
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Joined: Oct 2012
Posts: 101
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Oct 2012
Posts: 101 |
Glad you got some answers. I am recently diagnosed, gene neg also.
Jamie, 40 AS / psoriasis Enbrel weekly injection Tramadol, Flexeril and Hydrocodone as needed 
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