Kickas.org Forums Ankylosing Spondylitis General Discussion Helpful Tips is this not my body? :

Yesterday I was told I would be black balled by Dr.s if I refused more shots in my back, pelvis, hip and neck for pain relief. My inflamation is so bad I spent the day being checked for blood clots ( have a lot of muscle swelling and can't move my arm) , I've had the freaking shots, for me it makes it worse, how can these people tell me I have to have these shot?! When were my rights taken from me, and who gives them the right to corner me into not being able to say no. That's what child molesters and rapists do, they steal the your abillity to say no.

What are the shots? cortisone? triggerpoint injections?

For me, I've found that cortisone shots make things hurt more for a few days, then things do get better and better. Same thing for TP injections, but shorter time from bad to better. Ice helps the process for me immensely. As soon as I'm shot, I start icing it.

As for do you have to? Black listed? Don't listen to a bully. I had a rheumy who tried to bully me into things: "if you don't do this, then I can't help you." and he scared me. then a new rheumy was able to persuade me to try the same things through gentle reasoning. explaining things to me made it not nearly so scary.

No, if someone is bullying you, find another provider who will work with you.

Gentle hugs!

I wish I could find a different net work, that 's where the problem lies. The numerous shots Ive had were cortisone, my rummy is cool, but there are no pain management clinics here that deal with meds. I would be ok with the shots if and only if my inflamation was a bit more under control. My rummy agrees that the amount of inflamation is why the shots are making it worse. Of course she explained it better, steroids keeping me up along with pain, and the steroid switch has been flipped ( irritability and easily set off ... uggggg)

I've had .a LOT of these shots, and the last time I got them I said after two weeks later that I was done.

yes, if you have a lot of inflammation, then you have a lot of fluid in that joint, and thus the extra fluid being injected in there will make things worse.

I had my SI joints injected. the right one was very bad and so that shot really hurt and it took much longer to start to get better.

that was an old physiatrist who i no longer see.

my current interventionalist does my shots now. he's done cortisone in my neck to good effect and trigger point injections to good effect.

when i told him why i didn't want my SI injected any more, he told me that the other doctor injected much too much into the joint and explained what i stated above. he said he injects the SI and none of his patients go through what i went through. he says he injects less and patients do better.

so i think it just depends on who you get.

but if you can't get anyone else, then i understand your frustration. but if given a chance to switch, then don't give up on the method completely.

like anything else. there are large variances in how good people are.

Thank you, I took your last post wrong, but in my defence the prednisone had turned to the dark side. I REALLY appriciate the input, I will talk to my rummy about her telling them where to put them. Thank u again, and please forgive my rudeness.

No need to apologize; I didn't take any of your posts as even remotely rude.

Upset about how you are feeling, yes. Upset about your treatment and how that's not going as well as you wished it was, yes. But that's all that came through to me.

Huggs!

and Happy Valentines Day!

Thank you Sue

I know one or two people that feel worse after a cortisone injection. I cannot take them because they make my heartbeat go up really high, but I can take a little prednisone under 10 mgs but it still makes my heartrate go up.
I think another doctor would gladly take you, because it means more money, so I would go to another doctor even though the dr you have said he would tell other drs not to take you. Other drs see $$ when they see you and the other dr is trying to scare you, what a jerk. One thing I thoought of is this, some places like the orthopedic doctor's office near my gouse has a pain doctor at the ortho office even though it is not a pain clinic. So sometimes you can search a doctor by their specialty and they may not work in a traditional pain clinic.
Also your rheumy can prescribe pain meds until you find a pain dr.
I know new doctor's starting up their own practice need new patients and probably would not listen to your dr. Maybe you could even go to another city.I hope it works out well for you, and I am sorry you have pain and have to go through this trouble.
Take care!

Thanks Valsmum, I'm so frustrated! This morning I was woke to pain so intense that my husband had to carry me to the bathroom ... freezing rain is not helping!