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Last week walked for three of the school pick ups 2 miles each Walked up the hill 2 miles
At the weekend did a fantastic felt making course which involved lots of vigorous rolling of rolls of wet felt.
So far this week walked two school runs.
Good job!!! I've wanted to felt for so long! Did you take pictures?
Originally Posted By: Sue22
Saturday, went up to the lake to take a walk along the nice trail up there near the marina. Walked ~1 hour. Some photo taking, some sitting and enjoying the feel of the sunshine and the sound of the waves. Walked maybe 2 miles.
Great job! I love to see the progression of your walks! Photos please?
Originally Posted By: Edwin
I swim one hour (non-stop) every day at the local pool. I don't count laps, because I'm in the dive tank and I alternate between strokes and treading. I also cycle to and from the pool now that spring has come. Not far, maybe a kilometre. On weekends I cycle a lot more.
I have this new rule whereby I either walk or cycle to the grocery store and only bring back (and eat) what I can carry.
Awesome to have you on the team! LOVE the grocery idea!
Originally Posted By: Shirley
Wow Edwin one hour swimming every day is impressive.I'm not sure I could swim for that long, mentally or physically.
I've been swimming two days per week, but am planning to increase it to three days per week. I've been very conservative about increasing the swimming for fear of aggravating my joints too much - as it is I sometimes have sore ankles or wrists or ribs the next day.
I currently work at home on Wednesdays, so have a mid-week swim and then another swim in the weekend. If I want to add another day it would be at the end of a full day at work plus bus ride to the pool near home - it will be interesting to see how I cope with that, but plan to try on Friday.
That's awesome! I'm just now increasing my swimming as well.
Originally Posted By: Orch
Went to my orthopedic surgeon today, and he took the brace away. Now I start physical therapy. He said I could exersize on a stationary bike, or an elliptical. Glad to get rid of the brace, but the shoulder does not move very well, and my security brace is gone.
So, I'm doing the maximum time on every joint method of keeping my mobility. The theory is, and I learned it here somewhere - most likely in a Molly post, that if one uses each joint to the maximum ability each day, mobility either increases or stops decreasing.
So… I've changed my swimming workouts to every other day in the late afternoon, and I'm slowly working up to a mile each time. I take a pain med right when I get into the pool, and a muscle relaxer right after I'm done swimming.
Yesterday I swam 1,500 yds and even though I had to take an extra pain med after I got into bed, I woke up feeling great.
Stay tuned! I credit my dad for insisting that I could still be a "normal" person, even though I was living with arthritis at age 8. I'm so grateful for the Arthritis researchers who spend their lives searching for a cure.
Go TEAM!
ANA+ RF+ Rh- HLAB27+ Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013 pulmonary edema w/ NSAIDS 2009
Last week walked for three of the school pick ups 2 miles each Walked up the hill 2 miles
At the weekend did a fantastic felt making course which involved lots of vigorous rolling of rolls of wet felt. I managed to take my turns no problem and didn't have any ill after effects even with the three hour drive each way to get there!
So far this week walked two school runs.
x
NSD almost all the way No dairy hard cheeses occasionally and homemade ghee Still trying to work out what makes me tick and what makes me drop
'Chew your drinks and drink your foods' 'Let your knife & fork do the work of your teeth and let your teeth do the work of your stomach' Mahatma Gandhi
I come here and I am thrilled at all you are doing. I hope I really am going to be able to join you after surgery. I made it across the street to day to see my neighbor's flower garden. That was progress.
Keep it up! You never know when next week you can't.
While it sucks to have this as an adult, it seems so unfair for kids to have to suffer like this.
But they are so resilient; we can learn a lot from them at the same time.
Yes, they are right; arthritis hurts. Well said.
PS watching it again: 300,000 kids with arthritis / 200 doctors "that can help them" is 1500 kids per doctor. Wow!
PSS also an eye opening reminder that its the number one leading cause of disability in America. And yet, I think its largely ignored by the public. I see all kinds of resources for other kinds of disabilities, which is great, but do feel arthritis is largely ignored.
PSSS They are so cute. How could anyone not pay attention to that message; thanks for posting it!
Last edited by Sue22; 05/09/1306:30 AM.
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
I come here and I am thrilled at all you are doing. I hope I really am going to be able to join you after surgery. I made it across the street to day to see my neighbor's flower garden. That was progress.
Keep it up! You never know when next week you can't.
I'd say AWESOME progress! Little by little. That's the way!
Originally Posted By: Sue22
But they are so resilient; we can learn a lot from them at the same time.
Yes, they are right; arthritis hurts. Well said.
PS watching it again: 300,000 kids with arthritis / 200 doctors "that can help them" is 1500 kids per doctor. Wow!
PSS also an eye opening reminder that its the number one leading cause of disability in America. And yet, I think its largely ignored by the public. I see all kinds of resources for other kinds of disabilities, which is great, but do feel arthritis is largely ignored.
PSSS They are so cute. How could anyone not pay attention to that message; thanks for posting it!
They are serious about getting things done! Kids are so awesome. :cheerleaders:
Originally Posted By: Orch
Still not doing a lot of exersize, but the physical therapist is causing me a lot of pain. I am doing lots of streches with my left arm.
I'm pretty sure that's in their job description. But good job doing the work! That's what will get you back out on the trails/roads!
Yesterday I limped a mile slowly.
Today I swam a mile in 50 minutes.
Go team!
ANA+ RF+ Rh- HLAB27+ Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013 pulmonary edema w/ NSAIDS 2009
Went swimming again last Friday 30 lengths (25m) 20 mins
Yesterday walked up hill we've been warmer in winter! Also did a shorter 'after dinner' walk.
Lu still not back to being ridden and I am definitely feeling it in lack of suppleness.
NSD almost all the way No dairy hard cheeses occasionally and homemade ghee Still trying to work out what makes me tick and what makes me drop
'Chew your drinks and drink your foods' 'Let your knife & fork do the work of your teeth and let your teeth do the work of your stomach' Mahatma Gandhi
I've been slacking on logging in my exercise this week!
Today-feet & hands very angry about the garden....limped 1/2 mile to the pool, swam 500 yds, limped 1/2 mile back. Yesterday-planted seeds at the community garden for 1.25 hrs, swam 1 mile Sunday-swam 3/4 mile Friday- rode my trike 1 mile, swam 1 mile.
So far the increase in swimming plan is working. Fingers crossed!
Go team!
ANA+ RF+ Rh- HLAB27+ Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013 pulmonary edema w/ NSAIDS 2009
I have an iPhone app called Walkmeter and it's helping me get out.
It's pretty cool: - records my walk on Google Earth with GPS - measures my speed - times the walk - measures elevation - save the walk in History so you can keep track - you can export the walk as a klm file (and a bunch of others) so it's viewable in Google Earth.
I got the idea I can do some fun stuff with it. A friend helped me find some shorter blocks where I can spell "Timo". I figure it would take about an hour and that's a haul for me so we'll see if I can do it. I tried one of my own but had to quit after the T and the I. Looong blocks... I can make designs in a field so that's another cool thing to think about. It would be nice to be able to change the colour of the tracking from the basic black to other colours. Might ask the company about that. One could do a bike trip the same way. Bottom line it's getting me outside
I've wanted to felt for so long! Did you take pictures?
![[Linked Image]](https://www.kickas.org/images/flowers/Smilingsun.gif)
But good job doing the work! 
