Kickas.org Forums Treatments, Drugs and Alternatives NSD and diet-related; Going back to LSD

I see no difference between LSD and NSD. I feel better but still need the same regular treatment on both. 3 years of NSD (this round and 2 years on a prior round), several 3 day apple only fasts, 3 Water only 3 day fasts, and a couple of rounds of antibiotics all to no avail and no additional benefit over LSD. Checked for heavy metals and doing Nystatin for any possible candida. Not much left to try frankly. Oh dropped 40 pounds and took by BMI to 18 at one point. I have almost no fat on my body now.

I have added White Rice, beans, and peas back to my diet as the only starch source. No difference of any kind has been noticed and eating with friends is so much easier.

Learned my guy hates lactose and diary period and I don't do well on gluten either. It was indeed a learning experience and I have a pretty healthy gut now because of it and all gut issues have gone away. It was a good thing and taught me how to eat healthy.

Guess it is LSD for life

Sounds like a plan. I hope it all works out well for you.

Please tell something more about Your AS symptoms before You started diet, because You didn' say anything to be compared with. It is obvious You are not on LSD nor NSD in this moment as you consume white rice, beans and peas.

actually I am on a LSD. Your definition is a bit different then ebringers it seems. Low Starch does not mean no starch and I totally avoid anything refined and all grains but white rice. I don't eat much rice maybe one or two meals a month when out with friends. Beans are Peas fit the definition of low Starch as it was originally conceived. I posted long ago when I started this journey but to recap.

I have had AS for over 25 years now. I had severe foot pain and knee swelling, chronic iritis and restricted chest expansion when I first tried 2 years of strict NSD. Chest freed up and feet got better. Iritis lessened but continued and there was no change to knee swelling and pain. Stayed that way for over a year and I dropped 40 pounds. Some of my friends though I had cancer. CRP was cut in half but stayed too high and so I went on a TNF drug and back on LSD.

Tried NSD again with hopes of getting off TNF drug. Very similar results. I gave it 3 years this time along with fasting and antibiotic trials. TNF drug lasts a lot longer with starch restricted diet though so I take less and that makes it worth it along with my gut feeling great now.

Out of ideas or reasons to stay on NSD when there is so little benefit after 3 years. LSD gives me the same benefit.

Perhaps it is the resistive colonies that John talks about that are isolated now from the digestive track or it simply did not work for me. Who knows I hve had AS for a long time.

For me it will always be a mix of standard treatments and diet it appears

Way to go, drizzit, for figuring out what works for YOU. That rocks and thanks for sharing that!

Thanks for update Steve

Wishing you many good years with Low Starch.

Tim

Just curious, what about potatoes? Carol Sinclair's book suggests sweet potatoes and regular potatoes are more tolerated than beans. In her book beans fall into the list of prime foods to cut out along with bread and pasta.

Hi Didier, for me that's definitely true. And for people with IBS who follow a low FODMAPS diet, legumes are not recommended while potatoes are considered more easily tolerated by sensitive guts. Not the same thing, I know, but I find it very interesting when things overlap like that.

I eat mostly green beans and they are very low starch. Potatoes have been something I avoid as I love french fries and hash browns and would eat way too much of the stuff if I ever turned on the spigot

Drizzit,
Do you go into a flare when you take antibiotcs? I took them a year ago and I flared big time. My rheumy said most of his patients flare when on antibiotics, so I was just wondering if you experienced more pain.

Take care