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#494651 09/11/13 07:38 AM
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I have red many posts and topics on forum but couldn't find any specific which deals with fusing. Also I have found many x-rays on net with different stage of fusing from discrete osseification to "bamboo spine".
Does someone know if there is anything what may be done with fusing to be stoped or reverted? I do understand that diet may stop the process of disease, but when fusing starts is there any benefit? Is fusing definite process?
Did someone make x-rays after longer period of diet? And were there any changes if fusion started?

nenadu73 #494652 09/11/13 07:55 AM
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I feel like fusion is inevitable with me. I seem to be unresponsive to every form on treatment I try. Hopefully I will find something that works in the future though. I think the key for me is to work on my posture so that I fuse upright without the stooping. I try to move and stretch as much as possible so hopefully I can avoid the stooping, although looking at my granddad's posture it's going to be one hell of a challenge for me.

I think if you can lower disease activity then you can slow fusion. One of the best ways to lower disease activity has to be diet. Many people do really well on this.

Good luck,
Seb

nenadu73 #494653 09/11/13 07:57 AM
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seb Offline
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I should also say that I am in the minority. Most people respond really well to forms of treatment like biologics so if you ever go on them, the chance is that you will live a fantastic life.

If you have a good treatment plan and exercise and correct your posture as much as possible, I think you'll do fine.

seb #494656 09/11/13 09:28 AM
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Dear Seb thank you for answer,
maintaining good posture is very important however not alwayso so easy to obtain. I was wondering if NSD may reverse fusing as dr Ebringer told that with diet we may get to the state of disease which was two years ago.

nenadu73 #494660 09/11/13 11:25 AM
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Hi There

I am one of the lucky one's . I am fused in my SI but in no other area. I have had A/S for 25 years, had terrible pain for years, but now it has really settled down. Don't give up hope. I don't do the diet , but I do exercise daily .

Janet

jpinperth #494664 09/11/13 12:55 PM
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Thank you Janet,
I am glad that You are doing fine and wish you to stay like that.
Did You take some medications?
AS goes in milder form in females so maybe it isn't so big miracle :-)

seb #494665 09/11/13 01:05 PM
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Biologics do not change course of disease and lot of heavy side affects go with them. Relief which they bring may be payed by very high price. Also they are absolutely unsecure about their effects on genetics, and children who you may have one day.

nenadu73 #494669 09/11/13 02:10 PM
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Hi There,

I took a very old NSAID called phenylbutaone daily for 20 years, until it was taken off the market. Then I switched to the news Nsaids and could,'t tolerate them. I credit my success to Omega 3 fish oil 6000mg a day for the past 25 years. It is a natural anti-inflammatory. It was a rheumy who suggested it many years ago.


Janet

nenadu73 #494675 09/11/13 05:16 PM
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Nooo not milder in females............ask Mig.........she's been there.

Can be as grim as can be for both sexes....I know cos I am a superior male..............gulp..!

nenadu73 #494680 09/11/13 09:10 PM
Joined: Nov 2002
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You are so right Ineptwill. Not so inept after all.

Oh wait. I read the rest of it. Superior male? Ineptwill IS the right word. smile




Possi
*********************************************************

RUN WHEN YOU CAN,
WALK IF YOU HAVE TO,
CRAWL IF YOU MUST,
JUST NEVER EVER GIVE UP!



"A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS."

"A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."

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