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Sometimes these studies make me feel like I'm living in a weird Woody Allen movie.
Isn't this whole pain & infirmity deal a result of too good an immune system?
Sue can you dumb down a scientific explanation for me?
OK, my take on things from all I've read.
Its not that our immune system is "too good" like they used to think. Rather that its just not functioning properly. In other words, not only are we attacking true invaders like foreign bacteria and viruses, but also in autoimmune diseases, ourselves, and in autoinflammatory diseases, maybe food "allergens" that have crossed the intestinal blood barrier due to "leaky gut". Or maybe its a war between good and bad bacteria in our microbiome (the microbes living in and on us).
Autoinflammatory because spondyloarthropathy doesn't trigger the production of antibodies (hence no ANA or RF) but does trigger the innate immune system (cytokines, macrophages, etc).
Thus, I do think it is ok to boost our immune systems in the ways they describe, and I think its the way that LDN works. Also, I think because of my "robust" immune system, I am better able to tolerate the Humira that suppresses a specific portion (TNFalpha) of the immune system.
I think my rheumy feels the same way because when i started the humira, he:
1. let me stay on the LDN
and
2. reminded me the importance of continuing with the vitamin C
Its more complicated than that, but that's a start. too there is a lot they don't know.
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Steve- sure I will join you! Drive my Harley... you are the man, go Steve!
That would be good for you to lead the way, and could clear the mountain lions, and bears away from the road. The first 7 miles is in the canyon. There are some big horn sheep in that canyon also. I have only seen them once, and they were up high in the rocks.
Before I forget again, here's what I've been doing since September.
I don't know why exactly, but I come home after 3 hours of sewing and ironing with horrendous pain. Walking on concrete floors maybe? I dunno... but I'm not quitting until we have a steady stream of 200 lap blankets a month.
We've had three sessions so far, and 4 more are scheduled. Next up is the veteran's art center, then the U, then another church and two places in the next big town over.
Thanks Sue for answering my questions. Darn it all, I was leading myself down a rabbit hole that made cigarettes a good immune system depressant. Yes.... very silly but I almost went there?!
Lon & Steve, I am a soooo with you guys for the 1/2 marathon as long as I can ride my trike!
I've been back to the gym for the first time in 7 years and it's so fun! The first time I tried it my sacrum blew up like a balloon, and I got bruises leaking out from my toes, ankles, and knees. Yes I know that doesn't sound fun, but it gets better. Now, after going 3X per week, I can do the elliptical for 15 minutes on the lowest setting and the recumbent bike for 15 minutes. No bruising lately. I think maybe my entheses points had to loosen up or something. Still swimming laps e/o day at the university. I tried the pool at the gym, but the chlorine/heat made me sick with flu-ish symptoms for two days after. Now I'm putting coconut oil on before the university pool to try and keep the chemicals away as much as possible. So far so good.
Go TEAM!
ANA+ RF+ Rh- HLAB27+ Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013 pulmonary edema w/ NSAIDS 2009
Its near zero degrees F more days of the week than not for the last few weeks, so little outdoor exercise. its gotta warm up soon I think.
erica, i find any repetitive activity surprisingly makes me hurt a lot more than I would think it should. Unpacking my office in august, wrapping presents in december, anything where i'm in one position and/or using repetitive motions is a killer. and so much better on humria, that this always surprises me...the littlest things seem to set me off. Sewing and ironing seem like very challenging tasks to me; I do neither.
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Hi team! I just walked to the pool and swam 1/2 mile. I went to bed in a seriously pessimistic mood last night, so the sunshine did me a world of good. Goooooo TEAM!!!
ANA+ RF+ Rh- HLAB27+ Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013 pulmonary edema w/ NSAIDS 2009
I was on vacation in Orlando for a week. I only ran once while there. The one run I did make was only 1.6 miles. I did do a lot of walking around the parks. My feet hurt every night from all the walking we did.
Sounds good to have Lon and Erica pacing me on the half marathon.
