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Joined: Jul 2010
Posts: 1,191
Steel_AS_Kicker
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OP
Steel_AS_Kicker
Joined: Jul 2010
Posts: 1,191 |
I have had RA for five years. In the beginning I tried a lot of meds and had some side effects that were worrisome , but my doctors never told me that my ailment was from my medication. I had to figure it out myself, by stopping the medication and see if the symptom went away.An example is anemia . Currently, if I have a new ailment I look to my medication side effects list first to see if my ailment is a side effect.
Diet change has improved my RA. I feel best eating raw veggies and some fruits and avoiding grains, sugars, nightshades, beans and dairy. Sed rate dropped from 65 to 19, but it took over a year. www.fatsickandnearlydead.com excess fat/oils = pain for me recipes for raw food on Youtube "raw food romance" and "healing josephine" Josephine is in remission from RA after two years by change diet/exercise
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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
Hi ValsMum - old friends surfacing... Good tip on the meds. I do the same as you. Those side effects can sure be worritsome. Take care 
MollyC1i - Riding OutAS
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
whenever i start a new med, I note the start date in a journal, and i keep a symptom diary....
for me, edema was something that crept up, and with the journal / diary, was able to tell it was from a med, as it started around the same time I started the med.
for me, stopping the med, stopped the edema.
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
Then do a re-challenge. Stop med. Wait. Are OK ? Right, re-start the med. If 'same' adverse events happen up, then, note and stop meds, which will now hit the no-no list.
I have a list as long as two arms...! Sigh.
MollyC1i - Riding OutAS
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Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
Good job ladies! Hello to you all. . Have missed you
Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
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Joined: Mar 2009
Posts: 216
Second_Degree_AS_Kicker
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Second_Degree_AS_Kicker
Joined: Mar 2009
Posts: 216 |
Ditto on stopping and checking. Although I have been known to through a hissy fit at the docs armed to the teeth with medical side effect reports  but they know me now lol now we go through time lines and possible things it could be and if they cant treat it they say "lets look at those possible side effects again" 
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Joined: Jan 2009
Posts: 4,501 Likes: 1
Supreme_AS_Kicker
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Supreme_AS_Kicker
Joined: Jan 2009
Posts: 4,501 Likes: 1 |
I always stop it and restart it after adverse symptoms stop. Usually, it's just a fluke. A few times, it's been due to the med. Then it goes on the 'don't take this med' list. A couple have had such a messy side-effect (totally climbing walls on a shot of compazine, a known side-effect) that I've permanently avoided it since.
Sometimes, it makes lab values wonky, so it takes some time to figure out what's causing it. Hubs had a reaction to Zanaflex--raised liver enzymes more than 3 times normal. They went down after stopping it, and is a known issue, so he doesn't take that any longer. But that might have been a mystery requiring a restart of the med to see if it happened again....or doc might have decided it wasn't worth the risk to the liver.
Always a good thing not to start more than one new med at a time, if it can be helped. Also a good thing to be your own advocate in things like this.
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away. Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2 SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
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