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#510324 04/14/15 01:08 AM
Joined: Nov 2011
Posts: 108
utahmom Offline OP
Journeyman_AS_Kicker
OP Offline
Journeyman_AS_Kicker
Joined: Nov 2011
Posts: 108
Just got back from the doctor about the pain in my Achilles heel. He said with someone with AS it usually takes years to stop hurting. Up until now, AS has only slowed me down a little. I have fusion in my back and can't reach the ground most days. But other than having a service dog, you would never know anything was wrong with me. Most people actually assume I am training her for someone else. I just want to stay active as long as possible. Sorry, just needed a shoulder to cry on for a moment.


Teri
http://agluten-freemama.blogspot.com/

Pain since 1989
Mis-diagnosed until 2011
SI joints somewhat fused, lower back is trying to fuse
Osteoarthritis in hips
Follows NSD
Takes Ibuprofen only when needed
Loves to swim.
Still working 5 days a week as a secretary then 5 nights a week waitressing.
Joined: Nov 2001
Posts: 18,141
Likes: 5
Very_Addicted_to_AS_Kickin
Offline
Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,141
Likes: 5
Hi,

The first question that came to mind was: did he have anything helpful to say about dealing with the pain, or physio, or anything like that?

I'm sorry you're having this trouble, especially given your jobs.

warm hugs,W


Kat

A life lived in fear is a life half lived.
"Strictly Ballroom"

Joined: Nov 2011
Posts: 108
utahmom Offline OP
Journeyman_AS_Kicker
OP Offline
Journeyman_AS_Kicker
Joined: Nov 2011
Posts: 108
Kat,

He said something about nitroglycerine patches. Has anyone had any luck getting Entheses to stop hurting?


Teri
http://agluten-freemama.blogspot.com/

Pain since 1989
Mis-diagnosed until 2011
SI joints somewhat fused, lower back is trying to fuse
Osteoarthritis in hips
Follows NSD
Takes Ibuprofen only when needed
Loves to swim.
Still working 5 days a week as a secretary then 5 nights a week waitressing.
Joined: Nov 2001
Posts: 18,141
Likes: 5
Very_Addicted_to_AS_Kickin
Offline
Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,141
Likes: 5
Wow,

I've never heard of nitro patches for pain. Weird.


Kat

A life lived in fear is a life half lived.
"Strictly Ballroom"

Joined: Jan 2008
Posts: 21,346
Likes: 1
Very_Addicted_to_AS_Kickin
Offline
Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346
Likes: 1
I have a few ideas:

Sometimes a 6 day methylpred dose pak will knock out an enthesitis that has been hanging on for months and months.

I was getting achilles heel pain something terrible at one point. I started wearing rubber flip flops in the shower all the time and my heel pain is much better.

I had a modest bout with it since september but needed methylpred for a meeting I went to a few weeks back and now its gone.

Also, the stuff my podiatrist taught me to deal with Plantar fasciitis does help my heel pain too....then again for me it could be enthesitis of where the PF attaches to the heel so maybe that's why it works.

Also contrast baths of hot and cold have helped all my foot inflammation.

And sometimes a few days of Aleve will help a lot.

Just some thoughts.

Last edited by Sue22; 04/16/15 03:28 AM.


sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
Offline
Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865
My foot and heel pain has come on and off as long as I can remember. I disagree with the M.D.. I must say though that it's been MUCH less frequent and severe since I started water exercises. I try not to kick too hard or go too fast. It takes me 1.5-2 minutes to swim 50 meters, but I don't get hurt that way. Hug hug
hugss


ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009

Movin' it so I don't lose it!

Joined: Mar 2002
Posts: 9,522
Likes: 2
Offline
Joined: Mar 2002
Posts: 9,522
Likes: 2
Hello there,

Finally have some time to check in. Hope you are doing better today.

I had some x-rays done 3 months ago for pre-employment process. The showed a bit more fusion, so a bit of a bummer. But I already knew that was the case with my daily stretching.

Keep your head up.

Tim


AS may win some battles, but I will win the war.

KONK - Keep ON Kicking
Joined: Nov 2011
Posts: 108
utahmom Offline OP
Journeyman_AS_Kicker
OP Offline
Journeyman_AS_Kicker
Joined: Nov 2011
Posts: 108
Thanks for all the input. Yesterday I started some physical therapy exercises my brother told me to do (he's an army doctor). It is feeling a little better. At least, I am not coming home from work in tears. I am going to continue with the exercises and NSD. I've been back on track since Easter. I will still have to wear the "boot" most of the time but I am hoping for the best.

Good health to all!!


Teri
http://agluten-freemama.blogspot.com/

Pain since 1989
Mis-diagnosed until 2011
SI joints somewhat fused, lower back is trying to fuse
Osteoarthritis in hips
Follows NSD
Takes Ibuprofen only when needed
Loves to swim.
Still working 5 days a week as a secretary then 5 nights a week waitressing.

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