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Joined: Jan 2010
Posts: 2,105
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cemc Offline OP
Major_AS_Kicker
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Anyone else have symptomatic vertebral haemangiomas?

Finally got to discuss the results of my last MRI (done a year ago), and it shows several haemangiomas in the thoracic area. I'm sure that the position of one correlates exactly with an area that has become increasingly painful, and is in the area of my spine that I think is causing some neuro problems (on the basis that injecting that area with steroid a while back relieved the neuro problems, but injecting other areas didn't, and also that I have more neuro problems when that area is more painful). I think I have probably had at least one haemangioma for 5 years or more, but I get the impression that I now have several more, and since the MRI I've had even more pain in the area of my back where at least one of these is (somewhere around T3, T4).

I realise that most haemangiomas are meant to be painless and not cause any problems, but it would seem that some people at least have considerable pain with them, and some people have the kinds of neuro problems that I have with them (gait problems, slightly wonky reflexes, neurogenic bladder, sensation problems, etc). I'm probably not likely to get this investigated further at the moment, so I'm wondering if anyone else is dealing with this, and has any self-help method of either relieving the pain or the symptoms.

Also, is there any link between haemangioma formation in the spine and AS or inflammation generally? or is it purely coincidental?

Joined: Jan 2004
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Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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cemc - ages since I`ve seen you around. Did do a shout or two, but you must have missed em.

Haemamgioma ? Sounds nasty. Hope someone here can come up some info to help out.

Take care -


MollyC1i - Riding OutAS
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cemc Offline OP
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Hi Molly, did notice your shout, but wasn't sure how long ago it was.
Not sure if the haemangiomas are nasty or just incidental, but it might explain the increased pain at around that area, as well as the as yet unexplained neuro stuff.

Still battling rheumies here, but at least he ordered another SI xray last time (after waiting 18 months to see him). He still maintains he cant see enough on the previous one, so in some ways I'm hoping things have progressed in three years enough for it to be obvious.

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Very_Addicted_to_AS_Kickin
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Ah-Ha - next time will put up a date...didn`t think. Brain fog !

Hope they do get to the bottom of the problem.

Battling the rheumies, as one does. Sigh. I`m battling with eyes and gut probs. One staggers on... alien

Take care -


MollyC1i - Riding OutAS
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Supreme_AS_Kicker
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I have a couple, but they are not symptomatic. Hope you find an answer. Sorry you are dealing with this.


DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9

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