banners
Kickas Main Page | Rights and Responsibilities | Donate to Kickas
Forum Statistics
Forums30
Topics43,792
Posts518,796
Members13,840
Most Online1,568
Jun 29th, 2016
Newest Members
Betsy, AshleyB, Dori, Mel_Sigman, wle2
13,840 Registered Users
KickAs Team
Administrator/owner:
John (Dragonslayer)
Administrator:
Melinda (mig)
WebAdmin:
Timo (Timo)
Administrator:
Brad (wolverinefan)

Moderators:
· Tim (Dotyisle)
· Chelsea (Kiwi)
· Megan (Megan)
· Wendy (WendyR)
· John (Cheerful)
· Chris (fyrfytr187)

QR Code
If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.

KickAS QR Code
Previous Thread
Next Thread
Print Thread
Page 1 of 2 1 2
#516118 11/12/16 09:07 PM
Joined: Mar 2016
Posts: 39
R
Rayd Offline OP
Member
OP Offline
Member
R
Joined: Mar 2016
Posts: 39
Hello together,

I am dealing with a flare since the beginning of the year. It was ugly (iritis, enthesitis, back pain), but it is much better since 2-3 month. But I still feel pain in my back, more or less. It is an up and down. So, there is definitely a steady inflammation.
I avoid coffee and every kind of caffeine since 10 days, because I had the feeling that I drank too much, and after a few days with some abstinence symptoms my back pain nearly vanished. Unfortunately it is coming back now. Fortunately I don't have to take any meds yet.

So, I think, because I am pretty straight in avoiding starch for a long time, that I have a problem with my guts.

That's my list of food:

fruits: blueberrys, rasperries, Oranges

vegetables: kohlrabi (a lot), broccoli (a lot), sprouts (sometimes), salad, sauerkraut, olives (green and black, a lot)

fish and meat: a lot of chicken, a lot of tuna, smoked salmon, smoked trout, sardines, pork, sometimes sausages or bacon but I try to avoid them because of the additives, sometimes red meat

further: oliveoil, salt, oregano

Supplements: magnesium, vitamin D, today I started with psyllium husks

Drinks: water, teas: rosehip, peppermint, camomile

no dairy, seeds (including nuts), no caffeine


Do you guys have any suggestions, what I can do or what possibly I do wrong?

Thanks a lot!
Rayd

Last edited by Rayd; 11/12/16 09:07 PM.
Rayd #516122 11/13/16 10:21 AM
Joined: Sep 2001
Posts: 6,151
Likes: 3
AS Czar
Offline
AS Czar
Joined: Sep 2001
Posts: 6,151
Likes: 3
Hello, Rayd:

Hope You can take some borage seed oil (>6 capsules) before retiring evenings. Good on with the EVOO, but supplements should include lysine, vitC, vitE, Bcomplex, and extra niacinamide. Good to eat some probiotic yoghurt (~2oz per day it is dairy) and more diet variety. Okra is good, nuts like almonds, walnuts, macadamias, and Brazil. Avoid sausages for their additives, and especially EGGS!

Hope You can get rid of the remaining pains and keep the iritis far away!

HEALTH,
John

Rayd #516123 11/13/16 11:02 AM
Joined: Mar 2016
Posts: 39
R
Rayd Offline OP
Member
OP Offline
Member
R
Joined: Mar 2016
Posts: 39
Hello John,

thank you very much for your help!

I definitely need more variety in my diet. I am just afraid to eat something wrong. I do not eat eggs anymore. I did a lot. Maybe that was part of the problem.

@ yoghurt: I will try probiotic yoghurt.
@ nuts: I read, that nuts are not so easy for the digestic system to deal with. Do you have other experience?
@ borage seed oil capsules: never heard of this before. Sounds very good. I will buy some and try them.
@ iritis: I think, that I react to too much sugar with iritis. So I avoid sugar.

Hope you are doing well!
Rayd

Rayd #516157 11/21/16 01:33 AM
Joined: Sep 2001
Posts: 6,151
Likes: 3
AS Czar
Offline
AS Czar
Joined: Sep 2001
Posts: 6,151
Likes: 3
Hi, Rayd:

Nuts are difficult to digest, but that does not mean they are necessarily hard upon our digestive tracts; it means there is residual undigested bulk that was not used as a substrate for bacteria--that is a very good thing.

In small amounts, yoghurt can be medicinal; good to begin with just 2oz per day to see how You react.

Many of us have candidiasis that is exacerbated by sugar and will make AS worse as a secondary reaction; it is very important to treat this before AS can be substantially improved through diet.

Wishing You every success and much renewed
HEALTH,

John

Rayd #516161 11/22/16 11:06 PM
Joined: Mar 2016
Posts: 39
R
Rayd Offline OP
Member
OP Offline
Member
R
Joined: Mar 2016
Posts: 39
Hi John,

thanks again for Your help. I suspected that maybe candida could be a problem and tried a treatment but I was not really straight about it, so I think I should do it again. I didn't knew, that many of us have this problem.
I still have some pain but don't need medication. Maybe because I don't eat any sugar (just some berries).

Wish You all the best!
Rayd

Rayd #516169 11/26/16 06:21 AM
Joined: Apr 2002
Posts: 2,485
Z
Colonel_AS_Kicker
Offline
Colonel_AS_Kicker
Z
Joined: Apr 2002
Posts: 2,485
Sausage - oh my goodness avoid! It is absolutely the norm for starchy fillers to be added. Gluten free will not help one bit.

Fruit - may I suggest : try pears and grapes. Grapes are berries too of course smile. Have fruit on a empty stomach, that's what works best for me. Not really an AS issue per se but rather a fermentative & candida issue.

Fruit fast - I used to do this frequently in order to push the reset button on all the inflammation. Fruit and water, juice and tea for three days. Three days is what it took for me - your mileage may vary. Once the pain is gone you can introduce other foods again one at a time and see how you react.

Yoghurt - make sure it has no inulin or FOS added (fructo oligosacharide). I found that the powdered inulin which they use was very provocative and brought on inflammation.

I initially had problems with natural inulin sources (a complex carb comparable to starch) but I found I could improve tolerance to natural sources via gradual introduction. The worst offenders for which it is artificially added is probiotic yoghurt and probiotic pills. Beware.

Tea - ok here is a weird thing I used to get : if I steeped the leaves too long then the tannins would actually make me sore! I know it's weird, and I can't say for sure what the mechanism is (die off? Tired liver?). And yet it is quite repeatable and many different teas would behave this way, even peppermint. Probably something unique to me but thought I should mention it.



what I can eat on the diet (click here) -- my blog -- contact me (PM is broken)
"Some men, in truth, live that they may eat, as the irrational creatures, 'whose life is their belly, and nothing else.' But the Instructor enjoins us to eat that we may live." -- Clement of Alexandria (about 200 AD)
Rayd #516170 11/26/16 06:32 AM
Joined: Apr 2002
Posts: 2,485
Z
Colonel_AS_Kicker
Offline
Colonel_AS_Kicker
Z
Joined: Apr 2002
Posts: 2,485
Supplements - check these with iodine of course.

Psyllium - I was never quite sure about this one. I seem to recall it caused some skin problems. I don't know.. maybe try without for a week.

Nuts - blanched almonds (no skin) and hazelnut are good. Almond flour is great for baking cakes.

Tahini bread - try this recipe sometime when you are ready
https://sites.google.com/site/cureankylosingspondylitis/recipes/tahinibread


what I can eat on the diet (click here) -- my blog -- contact me (PM is broken)
"Some men, in truth, live that they may eat, as the irrational creatures, 'whose life is their belly, and nothing else.' But the Instructor enjoins us to eat that we may live." -- Clement of Alexandria (about 200 AD)
Rayd #516174 11/26/16 09:49 PM
Joined: Mar 2016
Posts: 39
R
Rayd Offline OP
Member
OP Offline
Member
R
Joined: Mar 2016
Posts: 39
Hi zark,

thank you very much for sharing your experience!

I have also problems with natural inulin sources.

The thing with the tea is very interesting. Maybe you will find out, what is going on and share with us.

I read about that the digestition deals best with fructose on an empty stomach.

I hesitate to fast, because I am vey skinny (1,90 m, 74 kg), so I try to avoid it, despite I am very curious how it works (and I am sure, that it does!)


Rayd

Rayd #516214 12/08/16 07:38 PM
Joined: Dec 2012
Posts: 57
B
Bel Offline
Active_Member
Offline
Active_Member
B
Joined: Dec 2012
Posts: 57
My husband reacts to some meats from different sources

Get the best, freshest quality you can; eg organic

Try to avoid anything out of a tin

Last edited by Bel; 12/08/16 07:40 PM.
Bel #516284 12/23/16 09:28 PM
Joined: Mar 2016
Posts: 39
R
Rayd Offline OP
Member
OP Offline
Member
R
Joined: Mar 2016
Posts: 39
Hi Bel,

thanks! But why should I avoid anything out of the tin? What about tuna without any other ingredients?

Page 1 of 2 1 2

Moderated by  Dotyisle, Kiwi, Moderator 

Link Copied to Clipboard
Who's Online Now
0 members (), 41 guests, and 64 robots.
Key: Admin, Global Mod, Mod
Recent Posts
Uveitis again and I miss you guys!
by Magician - 01/20/22 05:14 AM
Popular Topics(Views)
3,181,146 hmmm
1,239,845 OMG!!!!
644,924 PARTY TIME!
Powered by UBB.threads™ PHP Forum Software 7.7.5
(Release build 20201027)
Responsive Width:

PHP: 5.5.38 Page Time: 0.023s Queries: 35 (0.006s) Memory: 3.2719 MB (Peak: 3.4724 MB) Data Comp: Zlib Server Time: 2022-07-01 17:32:29 UTC
Valid HTML 5 and Valid CSS