banners
Kickas Main Page | Rights and Responsibilities | Donate to Kickas
Forum Statistics
Forums33
Topics44,166
Posts519,787
Members14,015
Most Online1,931
Jan 16th, 2023
Newest Members
Erinsmom, brightredmoon, Garvan, GinaB2024, etdragon
14,015 Registered Users
KickAs Team
Administrator/owner:
John (Dragonslayer)
Administrator:
Melinda (mig)
WebAdmin:
Timo (Timo)
Administrator:
Brad (wolverinefan)

Moderators:
· Tim (Dotyisle)
· Chelsea (Kiwi)
· Megan (Megan)
· Wendy (WendyR)
· John (Cheerful)
· Chris (fyrfytr187)

QR Code
If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.

KickAS QR Code
Previous Thread
Next Thread
Print Thread
Page 1 of 3 1 2 3
Joined: Aug 2012
Posts: 35
B
Boxer Offline OP
Member
OP Offline
Member
B
Joined: Aug 2012
Posts: 35
Hey!

I am 27 years old and suffer from AS since approximately 7 years.
First of all: Sorry for my english, I am from germany tongue4

I have my AS realy good under control just with a diet like the paleo diet. But for me the main problem is gluten. So when I kick gluten (and a lot of milk) out from my nutrition, I dont get inflamations in my iliosacral joints and no pain!

5 years ago, I found this diet for me and since these 5 years I followed it very happy.
But the only thing I couldnt cure was the stiffness in the morning. Every morning i wake up after 5 or 6m hours of sleep and I have to move 20-30 minutes and only after this I can sleep again.
5 years ago the stiffness disapperaed till now. Actually my stiffness in the early morning exists since 1 or 2 months.
I thought, that the stiffness disappeares because of a therapeutic treatment from one of my therapists but yesterday I was at his place and got the same therapy and nothing changed frown

I will ask him a few questions about that but now i have some questions to you:

1) What causes the stiffness in the morning? Is this inflammation? I couldnt find something about that in the internet, the german speaking sources are not very good I think. Maybe you can answer me this question...

2) What are you doing against stiffness in the morning?

3) Do you have a special diet like my glutenfree/dairyfree diet?

I hope someone can help me, I am looking forward to your answers.

Thank you!

F
Frederick
Unregistered
Frederick
Unregistered
F
1) What causes the stiffness in the morning? Is this inflammation? I couldnt find something about that in the internet, the german speaking sources are not very good I think. Maybe you can answer me this question...
Sorry but I don't thing the scientists have come up with an answer to this one yet.

2) What are you doing against stiffness in the morning?
There seems little I can do so I just take extra pain killers a couple of hours before I am due to get up.

3) Do you have a special diet like my glutenfree/dairyfree diet?
I don't believe in any sort of special diet as a treatment for A.S. If a diet did work then all the rheumatologists on Earth would be recommending it to their patients.

[/quote]

Last edited by Frederick; 12/29/17 10:01 AM.
Joined: Apr 2009
Posts: 724
Likes: 6
M
Decorated_AS_Kicker
Offline
Decorated_AS_Kicker
M
Joined: Apr 2009
Posts: 724
Likes: 6

I experience stiffness in the morning when I indulge in to much of the softer cheeses's. I lay off those and I do fine. Sounds like you may have introduced something you are not aware of into your diet.
As for medical opinions the head rheumatoligists at the University of Utah is the one that stated I was in remission due to my diet and recommended no medications. I was told about the benefit of this diet by the first Doctor who diagnosed me with AS. And finally my personal Doctor after two years of my diet and progress which is checked every year speaks highly of it. He has told more than one patient about it. Also my allergist whom I used to go to four times a year before I started the diet has called and asked me to talk to some of his patients about it.
I don't know that it will work for everyone, I do know it works for me. Proven by medical tests, scans, blood work etc. It's not an easy road but for me it is the best road. I went from not being able to walk 100 yards to riding my mules and hiking mountain tops and canyons.
So good luck I hope you get it figured out.
ETTE.
Darrel

Joined: Jan 2004
Posts: 9,848
Likes: 6
Very_Addicted_to_AS_Kickin
Offline
Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848
Likes: 6
Boxer -

Ankylosing spondylitis morning stiffness - why ? This is your search criteria. Many links as to the fact of the matter - here is one such link :-
Ankylosing Spondylitis Treatment, Test, Symptoms & Diet - MedicineNet
https://www.medicinenet.com/ankylosing_spondylitis/article.htm
Stiffness, pain, and decreased range of motion of the spine are characteristic of the inflammatory back pain of ankylosing spondylitis. Symptoms include pain and morning stiffness of the spine and sacral areas with or without accompanying inflammation in other joints, tendons, and organs. Early symptoms of ankylosing ...

Is part and parcel of an AS diagnosis ! So, to be expected. My first flare was horrible, unable to move for about the first hour after getting up. Shower and dressing was...shudder. Had to move some in order to move at all ! Move. A physio controlled stretching programme can do wonders. Ensure is trained in treating AS...this is important. Many moves and movements are counter indicated. Many find swimming productive - not for me. The chlorine in the water and bacterial infections- no thanks ! Pilates is good, again, only with a trained exponent. Also some find yoga is beneficial. See the section here on KA for exercising - very good forum. Much interchange of methods and great support.

Diet. Great for many a spondy - and for RA. See the diet forum group on KA. Also see the Diet 'success stories'. Way to go. I use a modified low starch diet. Know when I overstep the mark...Ho-Hum.

Hope this has helped. Take care, go well - make it a great 2018 - kick AS into submission <smile> -


MollyC1i - Riding OutAS
Joined: Sep 2015
Posts: 305
Likes: 2
Fourth_Degree_AS_Kicker
Offline
Fourth_Degree_AS_Kicker
Joined: Sep 2015
Posts: 305
Likes: 2
Hello Boxer,

I also have varying amounts of stiffness. The longer I am in bed the worse it is. It used to only occur when I slept but now it is constant. I'm getting old - 49.

Since 2.5 years ago, in my case I often have to get out of bed after three hours of sleep and do yoga to get circulation up, lymph moving, squeeze interstitial fluid in and out of organs, get oxygen in, toxins out. More recently I have been even showering for the heat. I have been considering purchasing a Solo Sauna.

Within months after my very first major AS symptom flare, which was 2.5 years ago, I was able to get rid of all stiffness, achieving total remission. That lasted for a few months. I would wake up after seven hours of sleep feeling refreshed, vital, and young. I was on NSD and supplements but I think there were two major factors that made me sleep and feel well:


  • I ran 4.7 km to work two or three times a week.
  • microbial levels in my body were relatively low (my pet theory).


How is your exercise regiment?

I feel that in the past 2.5 years that the biofilms in my body have exponentially grown and that I have not ran intensely for a year. Four to five times a week I tend to bicycle fast for an hour a day with short periods of small mountain climbing but it isn't enough.

My sleep is horrible now and no drug seems to help.

I am planning on trying EDTA along with other detox supplements to see if they help. And lastly I am considering visiting a clinic like "The Institute of Molecular Medicine" to lower chronic infections.

Since you are in Germany have you considered looking into specialists that concentrate on maintaining the Extracellular Matrix (ECM)? If you know anything about its benefits for please direct me to some English web sites if you know of some. Otherwise please try to explain how maintenance of the ECM could help morning stiffness.

I hope this helps.
Kevin


HLA-B27 neg, vague AS symptoms in 20s and early 30s
1993:fibromyalgia (age 25)
2013.07:Reverse blockage in a SCUBA accident
2013.08:Scratched by a sick cat
2013.09:Strange sore throat then meningitis
2014:Chronic inflammation at the base of the skull
2014 to early 2015:excess NSAID use developed complete axial inflammation, included psoriasis
NSD helped well and but was not perfect
2018.07: weak +'ve tests for borrelia, babesia, bartonella and mycoplasma pneumonia using Armin Lab, ANA=equivocal
F
Frederick
Unregistered
Frederick
Unregistered
F
Originally Posted By Robin_H


The longer I am in bed the worse it is. It used to only occur when I slept but now it is constant. I'm getting old - 49.
I have tried every trick in the book to try and sort of my morning stiffness (or morning pain as I prefer to call it) all without success. I am not so much getting old as at 70 I have arrived.


Joined: Jan 2017
Posts: 195
Likes: 1
K
First_Degree_AS_Kicker
Offline
First_Degree_AS_Kicker
K
Joined: Jan 2017
Posts: 195
Likes: 1
Hi Boxer,

The stiffness in the morning is definitely because of inflammation.

If your pain and stiffness overall have improved but you are still getting morning pain it could mean you are eating foods you should not be eating. Long before I knew about AS, I realized that dairy made my joints hurt more. A few years later I realized grains were a problem. And when I stopped eating dairy and grains my pain improved a lot. Like you, I was eating a Paleo diet and feeling much better!

But, like you, morning stiffness was still an issue. It wasn't until I went starch free that I became pain free. My pain only comes back when I eat starchy food.

Paleo eliminates foods like dairy, and really high starch foods like wheat, rice and other grains. But a paleo diet can still be too high in starch for someone with AS: sweet potatoes, squash, dates, almonds, carrots, apples, etc. It wasn't until I eliminated these foods that I became pain free.

I also take a strong probiotic every day and then every 2 months I switch to a herbal antibiotic (berberine, oil of oregano, peppermint oil, caprylic acid, etc.) for 1-2 weeks. Now I find I can eat low starch foods (e.g., carrots, grapes) regularly without pain.

Last edited by Kellybells; 01/05/18 01:40 PM.

Suspected USpA. HLA B27, xray, u/sound, blood tests all -ve. Ancient history of plantar fasciitis, SI joint pain, knee arthritis. Recent history of tendinitis, neck pain, debilitating finger pain and stiffness (especially mornings). No diagnosis, no meds.

2010 - stopped eating dairy
2012 - stopped eating wheat
2014 - stopped eating all grains
Jan 2017 - discovered NSD - 98% improvement in symptoms, continually amazed by my results, wish I'd found kickAS sooner
F
Frederick
Unregistered
Frederick
Unregistered
F
Originally Posted By Kellybells


The stiffness in the morning is definitely because of inflammation.
Yes I can agree with that


If your pain and stiffness overall have improved but you are still getting morning pain it could mean you are eating foods you should not be eating.
There is no proof that diet has any affect re. A.S. Why do you suppose it is that Rheumatologists don't recommend diet as a treatment for A.S.


Joined: Jan 2017
Posts: 195
Likes: 1
K
First_Degree_AS_Kicker
Offline
First_Degree_AS_Kicker
K
Joined: Jan 2017
Posts: 195
Likes: 1
Originally Posted By Frederick

There is no proof that diet has any affect re. A.S. Why do you suppose it is that Rheumatologists don't recommend diet as a treatment for A.S.

Frederick enough. There's lots of evidence on this site that diet works. Every time you denigrate the NSD, you insult the members of KickAS who successfully manage their pain and stiffness through diet, myself included.

This is supposed to be a positive and supportive space. Yet your posts on the subject of diet are neither respectful nor constructive. Please just stop.


Suspected USpA. HLA B27, xray, u/sound, blood tests all -ve. Ancient history of plantar fasciitis, SI joint pain, knee arthritis. Recent history of tendinitis, neck pain, debilitating finger pain and stiffness (especially mornings). No diagnosis, no meds.

2010 - stopped eating dairy
2012 - stopped eating wheat
2014 - stopped eating all grains
Jan 2017 - discovered NSD - 98% improvement in symptoms, continually amazed by my results, wish I'd found kickAS sooner
Joined: Sep 2015
Posts: 305
Likes: 2
Fourth_Degree_AS_Kicker
Offline
Fourth_Degree_AS_Kicker
Joined: Sep 2015
Posts: 305
Likes: 2
Originally Posted By Kellybells
Originally Posted By Frederick

There is no proof that diet has any affect re. A.S. Why do you suppose it is that Rheumatologists don't recommend diet as a treatment for A.S.

Frederick enough. There's lots of evidence on this site that diet works. Every time you denigrate the NSD, you insult the members of KickAS who successfully manage their pain and stiffness through diet, myself included.

This is supposed to be a positive and supportive space. Yet your posts on the subject of diet are neither respectful nor constructive. Please just stop.


他是一个脾气坏的老人 grin


HLA-B27 neg, vague AS symptoms in 20s and early 30s
1993:fibromyalgia (age 25)
2013.07:Reverse blockage in a SCUBA accident
2013.08:Scratched by a sick cat
2013.09:Strange sore throat then meningitis
2014:Chronic inflammation at the base of the skull
2014 to early 2015:excess NSAID use developed complete axial inflammation, included psoriasis
NSD helped well and but was not perfect
2018.07: weak +'ve tests for borrelia, babesia, bartonella and mycoplasma pneumonia using Armin Lab, ANA=equivocal
Page 1 of 3 1 2 3

Moderated by  Megan, WendyR 

Link Copied to Clipboard
Who's Online Now
0 members (), 302 guests, and 99 robots.
Key: Admin, Global Mod, Mod
Recent Posts
Its been a long, long time
by Richard - 02/27/24 10:49 AM
AS questions from a newbie
by Karma_Coconut - 02/09/24 02:25 PM
Popular Topics(Views)
3,361,975 hmmm
1,319,726 OMG!!!!
709,316 PARTY TIME!
Powered by UBB.threads™ PHP Forum Software 7.7.5
(Release build 20201027)
Responsive Width:

PHP: 5.5.38 Page Time: 0.024s Queries: 35 (0.011s) Memory: 3.2499 MB (Peak: 3.4498 MB) Data Comp: Zlib Server Time: 2024-03-29 08:19:49 UTC
Valid HTML 5 and Valid CSS