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Joined: Apr 2014
Posts: 82
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MarkyT Offline OP
Apprentice_AS_Kicker
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Joined: Apr 2014
Posts: 82
Originally Posted By Janclebro
The first thing that strikes me is your low levels of Clostridia. This is key! You will find it mentioned in The Keystone Approach. Low levels of Clostridia have been implicated in the spondyloarthropathies as well as RA. In fact Jansen Pharmaceuticals are apparently developing a probiotic for us containing the strains of Clostridia we need. Meanwhile, the best way to build them up is by focusing on bifidobacteria which produce butyrate, which will help heal the gut and build up the levels of healthy Clostridia. You've probably had it explained that your high levels of faecal calprotectin are because of the inflammation in your gut. That book is so helpful and such an excellent read, MarkyT!


Hi Jancle, I started reading the book yesterday. Regarding Butyrate I have a supplement but I suspect that it might be pointless and going the prebiotic route might be the best option like you mentioned. Looking forward to reading and learning more about it in the book. Also I recently bought Saccharomyces Boulardii (Florastor) and will see if it's going to help. I am still working on my diet and will probably go low starch and focus mostly on chicken, salmon, mackerel and lots of non starchy veggies, some fruit and organic yogurt but won't be eating other dairy.
Will also incorporate homemade probiotic foods such as homemade sauerkraut, pickles etc.

Do you personally follow any special diet, supplement regime ? Thank you and hope is all well!

Joined: Nov 2001
Posts: 18,139
Likes: 4
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,139
Likes: 4
While Crohns is more common, inflammatory bowel diseases in general go with AS. That would include ulcerative colitis. I'd say they feel your case is chronic.

The have found no kleb.p. connection in my case.

Warm hugs,


Kat

A life lived in fear is a life half lived.
"Strictly Ballroom"

Joined: Jan 2017
Posts: 195
K
First_Degree_AS_Kicker
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First_Degree_AS_Kicker
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Joined: Jan 2017
Posts: 195
Originally Posted By Janclebro
The first thing that strikes me is your low levels of Clostridia. This is key! You will find it mentioned in The Keystone Approach. Low levels of Clostridia have been implicated in the spondyloarthropathies as well as RA. In fact Jansen Pharmaceuticals are apparently developing a probiotic for us containing the strains of Clostridia we need.

I remember seeing something that linked peanut allergies to low levels of a Clostridia bacteria in the gut. Apparently the presence of Clostridia species promotes tight junctions in the gut lining, which prevents the leaky gut that has been implicated in a number of conditions. It also makes sense that the body would react this way - while there are some harmless ones, and even some beneficial Clostridium species the family includes some really bad actors, including C. difficile and C. botulinum.

I have found a probiotic that contains C. butyricum, which is a bacteria that has an added bonus of producing butryic acid, a SCFA that is the colon's primary food source. The probiotic is called Probiotic 3 by AOR


Suspected USpA. HLA B27, xray, u/sound, blood tests all -ve. Ancient history of plantar fasciitis, SI joint pain, knee arthritis. Recent history of tendinitis, neck pain, debilitating finger pain and stiffness (especially mornings). No diagnosis, no meds.

2010 - stopped eating dairy
2012 - stopped eating wheat
2014 - stopped eating all grains
Jan 2017 - discovered NSD - 98% improvement in symptoms, continually amazed by my results, wish I'd found kickAS sooner
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