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Joined: Feb 2024
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OP
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Joined: Feb 2024
Posts: 1 |
Hello,
I have suspected that I may have AS at a low level since I was in my 30s - I'm 60 now. Morning stiffness was an intermittent thing until I had Covid last year, and now it's every day (woken at 2am if I move in bed). In addtion, I have been experiencing very severe problems since a non-covid virus last weekend. I don't know what's going on and will be seeing my GP on Monday. I was wondering if someone could answer a few questions for me before I go? Thank you:)
1. I wasn't sitting in a 'supportive chair' whilst I had the virus last weekend, so I guess I might have slipped a disk. How would I tell the difference between that and an AS flare? The pain is really bad (gripping buttock and lower back muscles, with jags of pain when I move'. Only ibuprofen seems to tone it down - gentle walking around my kitchen doesn't touch it. 2. Could it be both low-level AS and an injury? Does AS make you more prone to joint injuries? Can joint injuries trigger an AS flare? 3. The low starch diet looks interesting. Is this only relevant to people with HLA-B27? I don't know whether I have that genotype, but suspect because we have various incidents of autoimmune/inflammatory things through our family.
Thank you so much if you can answer any of these for me.
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Joined: Sep 2001
Posts: 6,167 Likes: 13
AS Czar
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AS Czar
Joined: Sep 2001
Posts: 6,167 Likes: 13 |
WELCOME, Karma_Coconut:
Just my humble opinions--
1. I wasn't sitting in a 'supportive chair' whilst I had the virus last weekend, so I guess I might have slipped a disk. How would I tell the difference between that and an AS flare? The pain is really bad (gripping buttock and lower back muscles, with jags of pain when I move'. Only ibuprofen seems to tone it down - gentle walking around my kitchen doesn't touch it.
A: A "flare" will typically involve many different areas at once; the inflammation is systemic. What You have described is common and can be attributed to sciatica, also. It is best to seek a physician's evaluation.
2. Could it be both low-level AS and an injury? Does AS make you more prone to joint injuries? Can joint injuries trigger an AS flare?
A: Of course it could be AS PLUS anything. Did You injure Yourself? Advanced AS will make us prone to joint injury even slipped disk because our vertebrae become misshapen. Any injury can "trigger" AS by slowing down digestion; chronic stress will make AS much worse!
3. The low starch diet looks interesting. Is this only relevant to people with HLA-B27? I don't know whether I have that genotype, but suspect because we have various incidents of autoimmune/inflammatory things through our family.
A: The LSD will work for everyone with AS and also help people with Crohn's who do not usually possess the B27 antigen. I do not trust the test for this antigen unless done using Fc or ELISA methods.
HEALTH,
John
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Joined: Dec 2023
Posts: 4
New_Member
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New_Member
Joined: Dec 2023
Posts: 4 |
Thanks for your reply John,
Re Q3. I see you've had some years in these forums but reading through some I got the impression some AS sufferers don't have success with the LSD - one resorting to carnivore diet for example. I've been LSD and then NSD for maybe 18mths and 9mths respectively, excluding a foolish Thanksgiving (Nov 2023) indiscretion.
Does NSD mean avoiding even Kale and celery because the iodine turns black on the fine threads in the stalks? I've stopped walnuts and pecans because these have tested some starch with iodine.
My Rheumatologist diagnosed me with Psioratic Arthritis and Spondyloarthritis - which I think means "not yet" AS, but just SpA for now.
I'm grateful for any insight or correction on anything I've written.
I have Non-radiographic Axial Spondyloarthritis and Psoriatic Arthritis. NSDiet (on and off NSND) for 18mths with mostly only moderation of psoriasis. SI joint and back seem to be getting slowly worse. A Chinese herbalists "Itch Cream" worked wonders on psoriasis (one small application weekly!). Can it's ingredients be taken internally for AS?
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Joined: Sep 2001
Posts: 6,167 Likes: 13
AS Czar
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AS Czar
Joined: Sep 2001
Posts: 6,167 Likes: 13 |
Hello, Rob:
I am certain that leafy vegetables are safe even if threads turn dark. Understand NO STARCH is an impossibility but we are as close as practicable. The cellulose threads in some vegetables do have a very small amount of starches but these are far less than .1% and we can tolerate, in a natural state, up to 5%; ten times less if unnatural (refined, turned into flour, etc). The walnuts and pecans are fully safe also; I don't know of many people who have reacted to them. More common to react to almond skins, for example.
The distinction between PsA and AS is very small and most people with AS do have some psoriasis. It has come down to another starch-loving germ perhaps; others have noticed elimination of psoriatic patches while being strict with diet and a return when not strict.
If Your antigen status is B-27 there should be no difference in treatment anyway.
Some few people might have oxylate sensitivity that can exacerbate symptoms because of gut compromise.
HEALTH, John
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