Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Vascular parkinsonism

Hello all from a snow-free England. Quick gloat, but I do realise the snow in the US is not a joke!
Anyway, I ramble and distract myself. Last February, a neurologist diagnosed me with vascular Parkinsonism. Imagine my surprise when, in his closing comments, he said fairly authoritatively that Ank Spon was to blame; he qualified that by adding, 'or the surgery'.

I have had 27 falls in 2025 and 30 in 2024. I am wheelchair-bound but can escape it on familiar terrain like home. I am permanently dizzy and have no balance! Has anyone else suffered my fate?

Alan Known as inept because I am

Howdy, Alan!

I'm very sorry to hear the disease progression! You could use a dip in the Serpentine (mild jab)... Yes, AS is a nasty beast that causes several vascular problems. The primary problem is excess IgA and inflammatory deposits/debris that block capillaries. There are ways to avoid, but I do not know about actual treatments for this, outside of fasting.

I get a little dizzy also. Just off another 5 day fast myself and I did not do very well after such a long hiatus from famine cycles. I was doon for Burn's Day even! Still, I haven't checked my capillaries yet. Sometimes I take the enzyme nattokinase, in the hopes that carries away some of the crud.

27 falls! Too many. The trend would be good if You were not a year older. You fell down 3 fewer times, but You probably did 18% less stuff to put Yourself at risk! I really hope that You can better control that particular aspect of Your golden years. Perhaps parallel bars throughout Your environment will be required and there are really good fold-up walkers as adjunct to the wheelchair.

We were in London September before, visiting Professor Ebringer at his retirement home in nearby Hendon. Gave me his 3 published books.

Glad to see Your post.

HEALTH,
John

Was hoping for a response from you, John, and I got my wish. Yes, I am very careful when walking these days. It was a disappointing diagnosis because I had envisioned making a few odd items of cabinet work in retirement, not that I have retired; I am still teaching piano. But. I cannot even sweep a plane over a piece of teak a half-inch thick, and thus I tend to sit around a lot. Further to that Parkinsonism update, I have considerable rib deflection too; they seem to be deflecting out of my chest area! I presume, John, that your fusion of skeletal parts is widespread? Thank you for responding; it is always a delight to correspond with you.

Alan.