Does anyone on here suffer with a sore mouth and tongue. Or is it just me had it for months just as I think its cleared up its back.Stings when I eat or drink anything.
Kevin.

I've had periods of time when I've suffered from this, Kevin. Not too bad right now. At first, I thought it was linked with my GERD. Then, there was a suspicion that I had lupus - this was before my joint problems really got going. I had a lot of mouth ulcers with the generally sore mouth and tongue.

Now, I think it may be sjogrens or GERD - not really sure. I'm waiting to see if it gets worse with the methotrexate.

Thanks Wendy thats interesting I get a very dry mouth at night too.I will mention it at my next checkup.
Kevin

hi kevin,

for the last year or two or longer? i get inflamed tongue bumps, doesn't look like much (just an inflamed bump here or there), but boy do they hurt. not sure what causes them, but never used to get them. and sometimes sores in other parts of my mouth and i wonder if i did something dumb and just don't remember, but they seem to happen too frequently and never used to happen, so i wonder if its all connected. i wonder too, am i dehydrated? is that doing it? or is it autoimmune? or endocrine related? i've asked doctors, but no one is very sure.

as for dry mouth, mine is caused by the muscle relaxant, zanaflex, that i take. its not too bad though if i drink a full glass of water when i take the zanaflex, and if i'm awake an hour later when the side effects start to kick in, drink another glass or two or three. could it be medication related for you? if so, drinking more might help like it does for me. if its autoimmune related, i imagine that it could be harder to "fix".

sue

Hi Sue
Ive had it for quite a while. The only meds I take that could cause it are my inhalers for my C.O.P.D but I use a mouth wash after Ive taken them so it shouldnt effect my mouth. Doctors dont seem interested in minor problems.Its just so annoying everythng you put in your mouth is like its red hot.Have to drink more cold beer wont cure it but wll make me feel better.
Thanks Kevin

Yes Kevin. Had it for years, comes and goes in frequency and painfulness. All part of the jigsaw I'm afraid. Time that really 'got' me was when I had an ENT appt, had had a horrible mouth of sores and such. Came the appt, and, all clear! Couldn't invent it. Sigh.

No. Don't do owt for em. Did try OTC stuff but didn't work and really can't be bothered belabouring the fact of the matter to the doctor - they aint interested and just look at one like one is...????? (Being a pain in de AS..)

Molly C (France)

Hi Molly
Yes know what you mean Its just so damned annoying.
Take care
Kevin

Quote:

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Doctors dont seem interested in minor problems....

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yes kevin, that's the kind of responses i've gotten too. and like molly said, 1/2 the time its cleared up mostly. and if they can't see it, it doesn't exist,
i can understand, if i was a doctor, it would be hard to dx something i couldn't see.

so, have decided to just focus on the big stuff.

i report it once so they know, then move on.
figure if it becomes a big enough problem.......

sue