Hi Jayne,
I admire your true grit soooo much. I am so glad that you will get some relief on the pred. and that will also buy you some time to figure out your next strategy!!! Way to GO. Jayne. My AS is identical to yours(constant chronic excrutiating flair..I was pretty much bedridden for five years, and am now doing well on Remicade) and I can't tell you how much your posts help me. I am now preparing for a possible end to the Remicade and am stratigizing as to what to do next. Thank-you so much for being so generous in sharing your pain with us. You are such a fighter and have such a beautiful family that obviously cares. Thanks for helping me with all your great posts and I HOPE you are soon pain free and on a fabulous vacation.
Liz