Hi to all my fellow AS sufferers. It is so bittersweet to know that I am not alone. Any who....I am 39, have had AS ever since I was 18, I also have thyroid disease, fibro, and have always had bouts of my hair shedding. They called my AS- Psoriatic Arthritis originally. I always led a pretty normal life, had a career, very outgoing, until I had my daughter 7 years ago. I got really ill, had to take sick leave for 3 years, blah, blah. Got an opportunity to teach in an environment where I was accomodated for 3 years and then had my job taken. (Long story)...Any way, I believe the stress of that sent my body haywire.
So, in Feb. my dr put me on Enbrel. I felt like a new woman, pain was gone, could turn my neck, started doing thing again. Fast forward a little bit, it stopped working. Started Humira in May, once again felt great for a couple of weeks and then bam! So, he increases the shots to 1x a week...I GET WORSE. I am now losing my hair in clumps, I can barely move, my tailbone hurts which is new, I have so much anxiety, my eyes burn, etc...I am SO CONFUSED! How could I be worse?
I really am so depressed that if it weren't for God and my family I don't know what I would do. My Mom is literally having to take care of my household. So I called my dr and he is seeing me on Monday BUT....our last conversation he told me Remicade would be the next option. This is not something I want to do. I have decided that the TNF blockers are not for me. I know they are "giving back people their lives." But I am also meeting real people who have developed more issues after using them. I simply don't know what to ask him for though....I thought once the inflammation was controlled the pain and hairloss would stop but it's back with a vengeance. I have tried NSAIDS in the past and like I said was ok...but I don't know if they will work now. Any suggestions? I have to get myself out of this awful place and take care of my family. Hugs to all of you and thanks for any replies.

"I can do all things through Christ who strengthens me."~~