Thank you so much for that response! (and thank you for the welcome also, Kurt!). I have read a lot that women present differently than men. I did have neck pain every night for quite some time a while back, but I never connected it (maybe some denial?! lol) I've had TMJ periods of pain as well ... I notice that the little, fleeting pains happen much more often on rainy days, humid days, stressful days and after sitting for a while. I'm encouraged to see that there are lifestyle choices to make it all easier as it or if it progresses. I am already doing physical therapy to get some good streches down and he's helping with what kinds of strength training to do to. Shockingly enough, my iritis flared up fast and furious over the winter but hasn't been an issue at all since I've developed all of these other joints problems. Thank God for those little bits of good luck I guess!

I am curious ... twice now I've had really intense pain in my thigh that makes it difficult to walk for a day or two, opposite legs each time. Once when hiking and again walking up several flights of stairs ... when I was hiking my muscle actually started to spasm every time I tried to take a step. I thought maybe I was really out of shape but then the stairs thing happened and that seemed a little too weird. I read that it might be referred hip pain, does that sound accurate?
I try talking to people about these things but no one I know in real life has AS ...

Thanks again for the responses! I'm terribly sorry to hear that your mother had to go through that John, and that you had to go through that loss.