Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Newly diganosed AS and already have MS

Just curious is there many on here that have both MS and AS? I was diganosed with MS 13 years ago at 20 years old, I have just found out that I have AS and go tomorrow to learn more. This is new to me. I think there should be a limit on how many diseases a person gets!!!

Sorry to hear. I think I've read before that there is a genetic link between MS and AS in some people, so a fair few of us are at risk.
love and hugs
alison xxx

Hi Jen - Welcome to the KA family.

My first DX was MS, that was way back when, like 1992 or summat. Was throwing multiple symptoms of what we 'now' know is AS, though a first cousin had MS, she was struck with it very badlky, and her sister had what was mostl likely AS.

OK. So after several years and the symptoms dying down into a remission, went into an almighty flare in 2002. DX AS. Still got AS. But who knows what else might come along a'knocking...haha I mean, I already have 22 add ons, so a few more is quite possible.

Thought. Wondet IF that is the reason that LDN (low dose Naltrexone, a drug that is very effective in MS patients and also many AS'ers have found to be effective for them as well as) works so well for me...hmmmmmm. LDN info here on the boards. You can put in a search - be ready to be swamped with info!

Good to see you foud us - take care.

Molly C (France)
Keeping on Keeping on

SOrry to hear you have both AS and MS. Welcome to KickAS.

Hi Jen, Welcome

I was diagnosed with MS then told no. Now MS is a possibility again. I was diagnosed with a number of autoimmune diseases, the last was PsA. (Vitiligo, Celiac, Fibromyalgia), and a host of other health issues. Doctors are also looking into Porphyria, taking Lupus off the books for time being. Just found out today that Porphyria has shown false positive reading for the definitive test for Lupus. This shows how close the autoimmune diseases are related.

Hugs
Gerri

Hi and welcome to KA.
A number of people here either have MS and AS, uspect they do or were diagnosed with one and then found out that they infact have the other instead.

This is an amazing site with pretty much all the information you will ever need.
Take care and all the best.

Trish

I was diagnosed with MS 13 years ago. Not a single symptom of it. Then told AS which was proven NO. Real diagnosis is actually scoliosis. Have complained for years since I was a teenager of sore backs. Now looking at my old photos my uneven shoulders are clearly seen.

Is scoliosis an autoimmune disorder? Sorry to hear jen0816 you've got two already.

I have both MS and AS. I was diagnosed with AS when I was 22. I can remember symptoms of AS since I was 14. I was diagnose with MS in 2004, after being on enbrel. I have had one major MS attack since then. I can still run, and ran a marathon in 2008. I do take Avonex for the MS, and an NSAID now and then for the AS.

Steve - do the docs believe that Enbrel caused your MS or is it coincidence. I'm thinking about what Michelle is dealing with right now.

I think that if you have a potential for getting MS then enbrel will bring it out. I don't think that most people should worry about getting MS from enbrel.