Kickas.org Forums Treatments, Drugs and Alternatives NSD and diet-related; At war

Hello Seb
Sorry to hear you are feeling so bad.
I really hope you can get to the bottom of it all.
I have a list of symptoms of my own at the moment...
I am also having digestive responses to certain foods (which one's I can't yet work out...)
For this reason I have decided to consult a nutricianist.
I am going next week and will be sure to report back any interesting findings
I am a little concerned at the moment about if I am eating enough, eating at the right times (or frequency) and also if I am overcompensating for not having starch - with other foods or good groups eg sugar or dairy.
Hope this will shed some light on the subject... I can't think straight at the moment and have lots of headaches and nausea.
Take care, hon.
Tink

Same Same, the more i read about Candida, the more confused i get. eg My spit test sinks like a sinker almost instantly but i dont seem to feel any ill effects from sugar. I use Low GI sugar these days, not sure if its any better than white really?..its still sugar. I drink Coke a bit as well, that doesnt seem to give me too many pain issues either.

I seen my DR today as she is insisting i see a rhuemy, i just said straight out, ive been going to them for the last 19 years every 6 months and all it has really achieved is a destroyed liver...thanks but no thanks...I mentioned about how i am benefiting greatly from the no starch diet and tried to explain starch binded meds give me back pain and she just looked at me like i am mentally challenged. i give up i really do, its sad to say but so many DR's just dont get it....its so frustrating ....id do anything for a DR that could just understand.

Hey, seb:

I don't know exactly what You are going through, but this is one time I agree with drizzit. I have been around these boards more than a decade and have found that the "natural" methods of treating candidiasis are not very effective, long-term. Hit it with the BIG GUNS--the fluconazole and others but don't hesitate using colloidal silver in addition to this.

But You are a young fellow, and can benefit greatly from long-term fasting which I attribute to helping me avoid ever getting any signs of candidiasis. After a 20 day fast, I was so close to being normal I forgot I had AS for a very long time--and that was before I knew a thing about NSD. You will fast like that and be reborn and with the diet (which should be more forgiving by then) You will never look back!

Fasting is the easiest diet of all--water, water, and more water. Write to me and I'll send to You my friend's chapter on fasting.

Hang in there--in any event You will overcome this monster,
HEALTH,
John

eek colloidal silver. i dont know much about it but if used on a daily basis long term...it could cause your skin to turn BLUE. it cannot be reversed! once you are blue... yer blue. please research well before going that route.

i do think it would be great if you could find a doc that was on your side to help w/ your journey. some remedies should be monitored by a doc w/ blood work and such.

i would start looking for a doc now... it took me 2 yrs to find a doc who was on my side. dont know what credentials are there but in USA mine was D.O.[doctor of osteopathy] and also certified in holistic medicine

*Medical Disclaimer*:

KickAS and its contributors are not legally liable for the content, information or opinions expressed herein.
Nothing communicated in any KickAS.org discussion forum should be construed as medical advice, regardless of the source.
Knowledge shared at KickAS.org is of a personal and not professional nature. Points of interest gained from this site should be discussed with your physician or specialist before making any change to your course of treatment.

In pregnancy, a low carbohydrate diet is potentially harmful to fetal development. Everyone needs a diet that meets their nutritional needs. If in doubt consult a qualified dietician.

Dear Seb,

I hope you will take the time to read and fully understand the above medical disclaimer, copied here from the home page of KickAS.org -- to bring to your direct attention that KickAS.org is not a qualified medical authority. KA is ONLY a patient-to-patient, non-professional, unqualified resource for support from other people who live with AS.

Please recognise that almost everything you read in here is posted by adults who are well past the rapid stage of teenage growth and who do not share similar dietary needs to a growing body such as your own.

Ideas from this forum should not be used without the advice of a medical professional.

Best wishes,
mig

Hi Seb,

I thought I had candida a few times on this journey as well because I took a long time to respond to the diet. I was super strict for months and my pain was only down to a 5 - 6 most of the time. I was only able to do the candida diet for 12 days though, it was super hard and I lost so much weight. Plus it didn't seem to help. I don't think I ever had it.

I finally resorted to antibiotics which helped me, but my case is really different than yours. I had this disease on simmer for 20 years and controlled it by popping ibuprofen like candy so I have a lot of intestinal damage. You're young enough that you can avoid this and I admire your willingness to fight so hard. My symptoms finally, gradually, with lots of ups and downs got better, but it took over a year and a half and I'm still not 100%. But pretty close these days.

I second the suggestion to try and find a naturopath. Mine has been a big help to me. She believes in what I am doing and works with me.

Good luck with the battle
Annette

annette: antibiotics for AS? are you refering to the ebringer protocol? if not then what antibiotic? :] thanks

Sunnypower, check out www.roadback.org as they promote antibiotics for AS treatment. Ebringer does not promote antibiotics for AS as far as I'm aware. His protocol is low starch diet and DMARDs like sulphasalazine or biologics etc isn't it?

My hubby Jon followed their protocol and took Doxycycline 100mg Mon-Wed-Fri for 3 months and it really helped his AS. The idea is to use low dose intermittent antibiotics so that you don't develop resistance to them and to minimise side effects like candida.

Unfortunately Jon did develop candida while on it so he had to drop the antibiotics and go on the candida diet for 9 months to come right again.

hi kiwi
re he he eally? i guess i got confused with some wording somewhere along the way. i do have some guidelines but just wondered what others were doing and how they were doing. is jon still on it? was he taking probiotics at the same time to prevent the candida but got it anyway? dang i wish there was microphones in here! im glad to hear it helped him! was he on NSD at the time...i want all the details lol i hope you dont mind. thanks