Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Stiffness in the morning

Taberge

Paul McKenna CD I can make you sleep has helped me improve my sleep, even when pai is bad

Ufortunately it has not helped my dad (He has parkinsons) but this could be because my dads cognition is not what it once was

i don't know, but it does work for me and it is very cheap on ebay or Amazon.

Might be worth a try

Love Joanne

Hmmm... I don't know. All I know is how I feel. Peace

I'm not sure that damage is only done during a flare. Sometime young people here report that they have already fused after just a short time of being aware that they had AS. That, to me, means that the damage was progressing all along. I think it can sneak up on us and suddenly we have fusing when we didn't know it was starting up.
Donna

It's my understanding that bacterial dysbiosis and systemic fungal infections can cause chronic toxicity which could in theory cause brain fog and other cognitive problems, as well as depression.

OTOH, it could be metabolic. To rule out acidosis, Joanne, try drinking a little club soda and see if the symptoms lift any. If you think it might be hypoglycemia, try a plain white rice cracker brushed w/MCT oil or a slice of fruit if you can have fruit. If either of the above alleviates your morning symptoms, you may just have an underlying metabolic issue.

I get metabolic acidosis and used to wake up nauseous every morning. Needless to say, I'm not a morning person. Acute acidosis, OTOH, sends me tailspinning into a deep, dark abyss i.e. nausea, extreme dental sensitivity, vomiting sometimes, visual changes, faint-headed, hearing loss, etc. Ditto hypoglycemia, which I get from accidental ingestion of fructose, sucrose, sorbitol and cognates of same. Acute hypoglycemia is the worst; I just want to die the nausea is so bad. It generally takes 2.5-6 weeks for me to recover from such episodes.

I stiffen up anytime I'm not up and actively moving. It's been that way since 1996. My arthritic problems presented as Hallux Rigidus and bilaterial hip subluxation back in the 70's. As of my last x-rays (2007), I have bilaterial SI sclerosis and multi-level spondylosis and DJD of the spine. I'm currently waiting to be evaluated for AS; my appointment's still a few weeks off.

Deb Mc

Your shares are very informative Deb, your understanding of the body and how it operates is very much like the way I see things. Bacterial inbalance within the gut is clearly the beginnings of so many illnesses we are seing in the West, and many so called genetic illnesses are becoming more common and it is likely that these same systems are triggering all this too

I am fortuate that I have had my Candida under control for over a year now, and had I not reintroduced starch and lactose so eagerly I might have even had more gut flora balance by now


The treatment I am using right now can take time. It is a bit hard to explain but the idea is that through a gentle process of detoxifcation the gut is stripped of its plaque, any damaged lining is healed and over time the gut repopulates with more favourable bacteria

Metophorically speaking I see all these carb eating pathogens like Candida Klebsiella as gangsters that have taken over the territory. Without a daily lunch and a favouralble atmospher for them, there is little point in them staying around

The daily ketones that I have it is claimed, are removing toxins, metals and so on and hopefully as the gut replemishes itself, it is argued that feeding the immune system appropriately with natural food will make her react more civily, the arguement being she was only messed up in the first place due to the over load of poisons from the modern diet, polution, metals, chemicals and so on

Of course i cannot prove any of this, but I can tell you that before I started working o all this my body was in a terrible mess and I could not function normally i the world

There is still a level of weakness, some illess still present, but I can actually feel my body repairing itself and now I only eat natural foods my body is finding life so much more easier to cope with. It is like the strain has been taken off and with this freedom instead of destroying me my immune system is finding ways to behave more noramally, so we will see

I am so glad I have given up the starch and lactose, my back is much happier and my joint pain is less than 1 out of 10. I still do not think it is time to reintroduce the sugar or the fructose yet. Being away form my pathogens feed gives me a sense of peace. Ad the ketosis, how I love it, I never ever want to loose it, it enables me to have an OK day. keeps my head clear, gvies me strength to excercise and so on

Now I am off the starch and lactose, my morning foginess has improved. I do still get the stiffness, but it is very mild compared to what it was like when i was eating the starch and Lactose

The best way I can describe it is that these pains feel like injury pains. they feel like pains from my damaged sacrioliac joint, but all the illness pains have gone. All I can do now is hope that now my immune system does not need to worry about the imbalance in my gut, and now that these pathogens are decreasing in number, hopefully they will be less likely to pour into my blood or ideed any other part of me where they should not be. And once my immune system realises these battles are over, as she strengthens with natural healing, then she may be able to do some constructive repair to my back

I know this must seem like it is all a bit out there some where, but I know women that have children with brain damage and autism, systematic epilepsy etc, and for years I have seen them follow these natural therapies withonly faith to go by, but their children have stood up and they are now at school with no signs that they struggled like this when they where younger

Deb, I know there will be a natural healer out there for you too, you already know so much, you sound like a healer to me, all you need is for somebody to pull it all together for you. And I wll pray for you, because with all I have seen I really do not think believe anything is incurable. and I can tell you re the type of person that will find healing

all my love Joanne

Getting to sleep is no problem whatsoever. It is the staying asleep part that is the problem.

I am not a morning person either. I'm very irritable and a little nauseated, in addition the pain and stiffness, if I have to get up and moving before I'm ready.

You're very sweet, Joanne. And you are right, as far as health goes we do think similarly.

I've already seen some "natural" healers, homeopathic, holistic and naturopaths. They push "natural" remedies that I cannot take anymore than the drugs pushed by allopathic docs. With the drugs, I think in part it's the fillers and so-called inactive ingredients that I react to, as most contain fructose (e.g. sucrose, sucrolase, sorbitol, other artificial sweetners - some of which are used a lubricants, believe it or not - and fructans/herbs, carob,and many other ogliosaccarides) or lactose in one form or another. Well, except for codeine, an active ingredient I cannot take in any form. Ditto Cipro.

I don't think I'd be a candidate for biologicals either, as I'm neutropenic and, as such, am constantly fighting infections and fatigue, which may be due, in part, to ATP depletion. All goes back to my metabolic woes.

We had our initial consult with geneticist #3 last week. She specializes in adult metabolics and internal medicine at a cancer center. She and her team spent 3.5 hours with me and my son and were totally stumped. They want a few more weeks to draw up a definitive plan of action. That'll give them more time to sift through our records with an eye towards delineating cause from effect. We have developed complication upon complication. In the meantime, they are prescribing a chromosome micro array for my son, pending approval from his insurance, and checking my kidney dysfunction. She told me that I may have to go off some of the nutritional supplements prior to further testing, something I dread the thought of. Those supplements are what alleviate my diabetic-like neuropathy and other painful symptoms I experience. She said they would try to work around any further invasive testing on me. Thank goodness! I don't think I'd agree to another liver or muscle biopsy at this time.

Anyway, the geneticist asked for more records, as if the volumes we already provided were not enough. I think that's a good sign.

I don't know for sure that I have Candida. I do get fungal infections in my toenails, almost chronic, that I treat with Oxine AH. Nor do I know for sure what type of bacteria is causing the DHPPA overload. I'm hoping the new rheumy will take an interest and look into that, do cultures. For now, I've decided to try some liquid ionic zinc as I can't take the colloidal silver indefinately. I think my tongue will be a good indication of whether or not the stuff works.

I trust you will eventually get the answers you're looking for, hopefully sooner than later. Hang in there, Joanne!

Deb Mc

Hi Joanne, I'm a bit late in reply here, haven't been on in a few days. Yes!!!! to your original question, though my morning stiffness is now 24/7 these days. It does take my mind and my body an hour or two before I can function for the day, mostly waiting on my morning meds to kick in. I am glad to hear you are doing well with the no starch diet as many here swear by it.
Cindy

I had a lot of morning stiffness and pain. It would take about 2 hours before I was able to move around and do anything. Now that have been taking the Humira. I don't even think about the stiffness in the morning. I just sit up, put my feet on the floor and I'm off and running... I feel like I am a new person, compared to the before Humira Donna. Of course not everyone can take it.
Donna