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mig #422833 12/05/10 03:06 AM
Joined: Jan 2004
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Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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Mig - When I filled it in I put that I don't take NSAIDs... As a man came back Positive. Changed gender, and as a female came back Negative.

The test is a skewered traversty. Wrote an told em so as well. So, write in. Tell em. Need to get this 'validated' (!!ah-hem) test' changed. Too many medics and rheumies will be setting store by this errant nonsense. That test is a total disgrace to the medical profession. Don't know where they dug that guy up from who put it together, but I'd like to see him confronted by a decent group of international rheumies...he would be confounded. He needs educating that's for sure.

As though ASers don't have enough to contend with without this clonking nonsensical rubbish on an AS association site.


MollyC1i - Riding OutAS
Joined: Jan 2004
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Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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OK guys, get writing. That so called 'validated' test needs to be *removed from the SAA Association site. It is a traversty.


MollyC1i - Riding OutAS
Joined: Apr 2009
Posts: 1,576
Gold_AS_Kicker
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Gold_AS_Kicker
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Yay, I flunked too. I am so glad I don't have AS that I think I'll go do some cartwheels. Er uh, maybe not as that would HURT!!!!

Dumb test anyway.

Joined: Feb 2009
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J
Decorated_AS_Kicker
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Decorated_AS_Kicker
J
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AS is extremely hard to diagnose!!!

Why AS is hard to diagnose - UK NASS Site


I ache, therefore I am

Joined: Jan 2004
Posts: 9,848
Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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Good one JimmyWA - impressed also that NASS interviewed a 'woman' and not the old confirmed stance of 'men and AS' nonsense... Excellent. Sure does show up SAA!

Hope that KA members are writing into SAA to complain about that very skewered back pain test!


MollyC1i - Riding OutAS
Joined: Oct 2010
Posts: 558
Sergeant_AS_Kicker
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Sergeant_AS_Kicker
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Posts: 558
With the future of others (seeking diagnosis) in mind, I do agree this needs to be addressed. What about a petition-style letter that someone here writes and those of us who'd like to sign sign?


~ Holly
Joined: Jan 2004
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Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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Good idea Holly. clap Pat on the back there gal. 1cup

Mig? You up for putting this together? You write well. NOT me, I get too fired up, and anyways, think it should come from, be initiated by, Nth America. And for another thing, think it should be originated by a KA moderator/senior KA person.

VERY happy to sign the letter.


MollyC1i - Riding OutAS
Joined: Mar 2002
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I
Titanium_AS_Kicker
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Titanium_AS_Kicker
I
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Molly, when will you learn........females never ever get AS so there..........errrr...

Joined: Jan 2004
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Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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I know Alan - stands to reason, females *can't get AS, not natural for em to...NOT in Nth America that is!! <LOL> But TG we live in Europe and don't 'seem' to have quite the same probs as our cousins in Nth America have in getting a DX. That's why it is crucial for SAA to be firmly put in place over this traversty of medical 'information'. No two ways about it, SAA needs a rocket under em.

Am rightfully indignant about the fact that one of our AS associations are putting out this errant nonsense. GGGGGGRrrrrrrrr

Yep. We need this letter written, and that crap 'test' needs to be removed. Put up the EULAR indices and copy in the NASS interviews.


MollyC1i - Riding OutAS
Joined: Oct 2010
Posts: 558
Sergeant_AS_Kicker
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Sergeant_AS_Kicker
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Another thing that bugs me about this test is that it references neck, hip and "other" but not si joints. That's where it all started for me, and many others, no?


~ Holly
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