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If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF  
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
I worry that it perpetuates a myth and continues to prejudice some doctors from taking the complaints of women as seriously. I totally understand your frustration, Mig...we've come too far to let false information drag us backward! 
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Apr 2002
Posts: 12,465
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Joined: Apr 2002
Posts: 12,465 |
What???  Oh Alan that takes the cake..! Well, I just tried doing the test for you and for the question, "Approximately how long have you had back pain or stiffness?" ... I calculated your answer to be 564 months! I am puzzled by why it seems to give so much weight to the nsaid question. 
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Joined: Apr 2002
Posts: 12,465
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Joined: Apr 2002
Posts: 12,465 |
Right on, Michelle! And yet there is progress, slow but sure. Just not on this test, apparently..! 
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Joined: Oct 2010
Posts: 558
Sergeant_AS_Kicker
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Sergeant_AS_Kicker
Joined: Oct 2010
Posts: 558 |
I'm one of the ones that was told only men have AS. Took me a year after that before I found my current rheumy and began treatment.
~ Holly
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Joined: Apr 2002
Posts: 12,465
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Joined: Apr 2002
Posts: 12,465 |
Thank goodness you persisted Holly and thank goodness for the good rheumatologists out there! If only men have AS, then I would really like to give mine back please. 
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Joined: Nov 2003
Posts: 8,190
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2003
Posts: 8,190 |
Hmmm so we have a racial test..lol
Speak kindly, Live simply, Care deeply, Love generously, and BLAH, HA, HA, LOUDLY! every chance you get.
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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
OK guys (an dolls!! <LOL>) - Here's an idea. Write into the SAA and tell em. Tell em *exactly as you have written here, everything. Only way you'll/we'll get this nonsense stopped. Send em the EULAR monograph, then follow it up with the BASDAI test. Gotta stop em in their tracks. Only blokes, b...dy stoopid. About time the SAA came into 2010.
MollyC1i - Riding OutAS
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Joined: Apr 2002
Posts: 3,607
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Joined: Apr 2002
Posts: 3,607 |
Hmmm... no surprise, it was a negative test for me. The only change I needed was to move "neck pain lasting for 3 months or longer" from no to yes. (It comes and goes in flares, and I'm not sure if it's ever lasted 3 months at once, but I'd say most months of the year, I still have neck pain.)
Alan, that's pretty funny that you were a negative though!
Great test they have there. I'm sure it was worth the hundreds of thousands of grant money they used on it. ha.
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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
I just filled it in. As a 'makle' it came back as Positive. As a female it came back as...dada...Negative! One shakes one's head.
Anyways, I have written to em and told em *exactly what I thought of their so-called 'validated' test. A disgrace to the medical profession.
OK guys, get writing. We need to get this so called 'test' scrapped. It's a traversty.
MollyC1i - Riding OutAS
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