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naj #452425 09/19/11 11:50 AM
Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269
Hi Jan, I'm so sorry that you're going through this, I know how hard it is, you, your Mother and your family are in my heart and prayers...big hugs and much love, my friend... hugss heart


Age 7- Kidney Necrosis
Age 11-Bursitis
Age 14-Costo
Age 17-Psoriasis
Age 32-Thoracic Outlet Syndrome
Age 33-Sacroilitis
Age 35-Interstitial Cystitis
Age 40-AS
Age 44-Fibro
Age 44-PsA
Age 45-MS
Age 46-Sjogrens
Age 46-Raynauds
Age 47-PF
naj #452428 09/19/11 12:53 PM
Joined: Apr 2009
Posts: 1,595
Gold_AS_Kicker
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Gold_AS_Kicker
Joined: Apr 2009
Posts: 1,595
Oh Jan, hugss hugss hugss

I lost my mum 13 years ago to bowel cancer when I had a 3 yo and an almost 1 yo. (Dad died from lung cancer when I was in my final year of high school, so mum did some of my *tough* years single handed!) How much I have missed her as a friend, sounding board and mentor! She was a wonderful grandmother to my older brother and sister's kids who lived closer and I'm saddened that my own kids didn't know her well.

I know how you must be feeling - it is hard to even start to repay the debt of gratitude we have for our mothers if they have become one of our friends as adults...

Spend as much time as you can with your mum, and remember to include your DD in her life, even though it is sad to see - she will process grandma's changing state in her own way, and it will help her to understand that the bond kids have with their mums never stops.

No matter how old we are we still always need our mums, so my heart goes out to you. heart


Louise

Happy to be a physio by day, not happy to be a Spondy 24/7! wink3
naj #452434 09/19/11 02:01 PM
Joined: Sep 2009
Posts: 1,236
Copper_AS_Kicker
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Copper_AS_Kicker
Joined: Sep 2009
Posts: 1,236
I'm so sorry, Jan. Prayers all around.


Micki
Mom to 9
Dx'ed Ocular Herpes, Sept. '08
Dx'ed AS May '09, suffering on and off since 1979
Dx'ed Non-Hodgkins Lymphoma May '08, relapse Oct '11
naj #452435 09/19/11 02:16 PM
Joined: Sep 2001
Posts: 8,397
L
Lon Offline
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
L
Joined: Sep 2001
Posts: 8,397
Jan,
Have you called hospice?
Can you somehow get her to your home?
Did she have a church where some caring people can help?

My thoughts and prayers are with you.

agape'
Lon

naj #452449 09/19/11 04:23 PM
Joined: Mar 2002
Posts: 9,552
Likes: 10
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Joined: Mar 2002
Posts: 9,552
Likes: 10
Hello Jan,

Very sad to read your post. Many prayers to you and family for comfort and strength.

My father passed away 2 years ago at 66 of complications from pancreatic cancer.. they caught it very early, but he got infection and never recovered from that.

Like you I went back home for couple of months through this process.. stayed with mom nearly a month after he passed away.

Best to you and many hugs,
Tim


AS may win some battles, but I will win the war.

KONK - Keep ON Kicking
Lon #452450 09/19/11 04:40 PM
Joined: Jan 2008
Posts: 21,346
Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346
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Originally Posted By: Lon
Jan,
Have you called hospice?
Can you somehow get her to your home?
Did she have a church where some caring people can help?

My thoughts and prayers are with you.

agape'
Lon


hospice was very good when my mother-in-law and then father-in-law needed them, a few years apart. i highly recommend them.



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Jan 2009
Posts: 4,501
Likes: 1
Supreme_AS_Kicker
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Supreme_AS_Kicker
Joined: Jan 2009
Posts: 4,501
Likes: 1
Sorry to read this, Jan. May all your family have peace as you go through this. I second the hospice suggestions. They can help with things that allow you to spend more time with your mom and less time doing 'stuff.' And 'time' can never recouped. Hugs to you.


DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
naj #452460 09/19/11 06:03 PM
Joined: Sep 2009
Posts: 1,335
Likes: 4
Bronze_AS_Kicker
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Bronze_AS_Kicker
Joined: Sep 2009
Posts: 1,335
Likes: 4
I always feel so inadequate as it seems what I feel in my heart is often difficult to release. I know your mom appreciates every minute you are with her. She knows, too, how difficult it will be for both of you to release each other. While this final step is being taken alone, part of your spirits will always continue communicating with each others in thoughts and in prayers. In laughter and in tears.

My prayers and thoughts are for both of you and your families in this time of grief and of need.


- Carpal Tunnel in BOTH hands
- Depression (MDD) Major Depressive Disorder
- Pituitary Adenoma
- Scoliosis
- Spinal Arthritis with bone spurs on spine
- Multiple Scoliosis diagnosed
- Herniating spinal disc
- HLAB27+
- Final diagnosis: Mild lumbar spondylosis

Previously told Mechanical Back 'Issues'. Hate this term!
naj #452464 09/19/11 06:34 PM
Joined: Nov 2001
Posts: 18,187
Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187
Likes: 7
Jan, I'm so sorry to hear this. You are such a good friend to your mom and I think she knows that. She and you and your family are in my thoughts and prayers. I'm sending white light and love for all I'm worth.

Love and hugs,


Kat

A life lived in fear is a life half lived.
"Strictly Ballroom"

naj #452467 09/19/11 06:51 PM
Joined: Oct 2007
Posts: 1,731
Likes: 1
naj Offline OP
Diamond_AS_Kicker
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Diamond_AS_Kicker
Joined: Oct 2007
Posts: 1,731
Likes: 1
Thank you all so much for the caring and kind words. I appreciate your empathy so, so much. Each one of you who wrote, your words touched me so much that I wish I had time to write each one of you a note to thank you and respond. I'm so sorry for your losses: many of you reflected on the losses of your parents or some one close to you. My heart goes out to you and thank you for sharing this with me. Regarding Hospice, thank you, yes, we are connected with a Palliative Care Team, which will become Hospice when needed. I so wish I could have my mom out where I live to stay with me, but she is all connected to her doctors and so on, and comfortable at home. I have help, too, with other family members there, and I'm not on my own caring for her. I just want to stay strong and able to pull my weight in helping her. Thank you again, so much.


______________________
Jan

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