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Joined: Jan 2010
Posts: 839
Ninja_AS_Kicker
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Ninja_AS_Kicker
Joined: Jan 2010
Posts: 839 |
I'm glad you're doing well, Alinus.
For myself, I have far too many dietary restrictions already. One I forgot to mention is low protein because I've had bouts of proteinurea and nephritis. It gets depressing. Just shoot me now if more are insisted upon. I can't even go out to eat with friends a lot of the time, unless they've chosen a restaurant with a large and versatile menu.
Quality of life is important to me. I've adapted to my new normal fairly well but removing bread, rice, pasta, etc. from my diet would make things overly difficult, more depressing, and socially isolating.
you're right, NSD involves lots of proteins and it will probably make your life even harder. But i do not agree with the social isolation - i am having no problems with this. If i get out somewhere and i know i will not find what food i need, i just eat at home and just have a drink there. I just pop up a bag of almonds or chashews not to make them feel bad that they eat and i'm not. True, it happened one time that we had to change 3 pubs because none had lager beer, the only one i can drink without issues  anyway, everybody has his own limits and his own definition of "quality of life". And i agree with you that we must protect what makes us feel better.
34. Some rheumys say AS stage 1-2 some others say USpA Also UC - rectocolitis. UC curently in remission since feb 2011. AS/USpA remission march-aug 2011. Flare - sept-nov 2011 (antibiotics). Remission now... Modified NSD/SCD. Cook your own ! ____________________________________________________________ Mesalazine-Salofalk 500 mg/day And the list of my medication has become verry short after some years on this diet
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Joined: Feb 2012
Posts: 18
New_Member
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New_Member
Joined: Feb 2012
Posts: 18 |
Alinus, I can't drink alcohol or eat nuts. My situation makes people uncomfortable in a foody setting. Friends are inclined to either not order what or as much as they want and/or they repeatedly express sympathy for my situation. It's awkward.
I live in Texas -- social events revolve around big food. I've learned not to go to gatherings that don't have a lot of food options. Take away bread, tortillas, potatoes, pasta, rice, even couscous, I guess, along with all of my other restrictions and there's precious little left. It would not be healthy and it would be depressing.
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Joined: Nov 2011
Posts: 108
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Nov 2011
Posts: 108 |
Alinus-great advice for social situations. I have been struggling with this for weeks. I'm definately going to try eating first then bring almond/craisin mix. I have found that others feel worse for us than we do for ourselves when we don't eat what they are. I was gluten-free for 2 years before being diagnosed AS (my daughter has severe wheat allergy). We would pass when offered doughnuts at gatherings and others would say "I'm so sorry you can't have it." For us, after a while, it was no big deal.
Teri
Teri http://agluten-freemama.blogspot.com/Pain since 1989 Mis-diagnosed until 2011 SI joints somewhat fused, lower back is trying to fuse Osteoarthritis in hips Follows NSD Takes Ibuprofen only when needed Loves to swim. Still working 5 days a week as a secretary then 5 nights a week waitressing.
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