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If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
not to say, one size fits all, but the two things that have really impressed me, in regards to MS: some of the video testimonials on youtube regarding LDN and MS and of all the LDN research, the success with MS seems the strongest and this one doctor/patient success with diet and supplementation bringing her back from the brink of total disability to standing and speaking at a TED conference: http://www.youtube.com/watch?v=KLjgBLwH3Wci don't know if these are the exceptions or the norm, but these are the things that got me really excited.
Last edited by Sue22; 04/15/12 06:21 AM.
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Feb 2010
Posts: 1,046
Iron_AS_Kicker
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Iron_AS_Kicker
Joined: Feb 2010
Posts: 1,046 |
A fellow engineer has a wife who was diagnosed with MS for 11 years when she really had Lyme's disease. May even have gotten a false negative test earlier, but I'm not sure on that.
If you've been taking TNF blockers then medicine-induced MS is probably more likely, but it's good to consider alternative causes just in case...
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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
Jean Seignalet is well know - had a link to a website that promoted his diet at one time. See what I can locate. Yes, he's really good. BTW - my pvt doctor (UK) is AS plus MS. He takes LDN *and follows low inflammatory diet. NO red meats and etc etc. http://seignaletdiet.wordpress.com/diet-basis/http://paleozonenutrition.com/2011/04/01...disease-trials/Seignalet is dead now - so sad when the best of the best die (we need em!). A google will bring up a ton of information and sites - some of the sites are in French, but above are in English. Have fun diggin -
MollyC1i - Riding OutAS
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Joined: Apr 2011
Posts: 105
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Apr 2011
Posts: 105 |
I hope you feel better soon, and that your symptoms go away and/or are significantly reduced when you stop Humira. I wish you all the best.
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Joined: Nov 2011
Posts: 18
New_Member
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OP
New_Member
Joined: Nov 2011
Posts: 18 |
Thanks I don't know what I would do without the amount of knowledge here! It's invaluable. I already planned on looking into diet, it always plays a part, despite what some people think. All the good thoughts and prayers are very much appriciated.
I stopped eating so much dairy a while ago, I ate way to much. So finishing that off shouldn't be a problem. I eat as much organic as I can afford, and have never been a fan of processed foods. I was raised on whole foods, so they are just gross to me.
live life for today, not tomarrow, or yesterday
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Joined: Sep 2001
Posts: 2,192
Major_AS_Kicker
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Major_AS_Kicker
Joined: Sep 2001
Posts: 2,192 |
Sorry to hear that, I hope you get feeling better. I was on Enbrel when I was diagnosed with MS. They gave me three days of solumedrol right away. I took Avonex for about four years, but insurance changed and it is to expensive plus I think I was starting to have an allergic reaction to it. Good luck.
Steve Orchard, Running from AS & MS
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Joined: Feb 2010
Posts: 2,190
Major_AS_Kicker
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Major_AS_Kicker
Joined: Feb 2010
Posts: 2,190 |
I am so sorry. I don't know much about MS, but I will keep you in my prayers.
Donna
Cherish your yesterdays,
Dream your tomorrows,
But live your todays.
Do the very best you can
leave the rest to God.
God Bless,
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Joined: Jul 2010
Posts: 1,191
Steel_AS_Kicker
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Steel_AS_Kicker
Joined: Jul 2010
Posts: 1,191 |
Hey MommyP,
How are you feeling, anything change, for worse or better? We are all pulling for you. Take care.
Diet change has improved my RA. I feel best eating raw veggies and some fruits and avoiding grains, sugars, nightshades, beans and dairy. Sed rate dropped from 65 to 19, but it took over a year. www.fatsickandnearlydead.com excess fat/oils = pain for me recipes for raw food on Youtube "raw food romance" and "healing josephine" Josephine is in remission from RA after two years by change diet/exercise
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Joined: Feb 2011
Posts: 1,968
Captain_AS_Kicker
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Captain_AS_Kicker
Joined: Feb 2011
Posts: 1,968 |
Very sorry for your new's. Have they determined if it was caused by the TNF blocker? You are in my prayers and I pray that they find something to help you with your pain as you discontinue the Humira and that they find something to relieve your symptoms of the MS. Please keep us up to date so we know specifically how to pray for you and your family. God Bless.
Pea
Diagnosed with A.S. 29 year's ago.
Diagnosed with Fibro 10 year's ago.
Remicade, Intrathecal Pain Pump 2013
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