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Joined: Apr 2009
Posts: 1,595
Gold_AS_Kicker
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Gold_AS_Kicker
Joined: Apr 2009
Posts: 1,595 |
So sorry to hear of the loss of your beloved brother Donna.  Hospice staff are usually a special kind, where nothing is too much trouble for them. I think your brother would have been uplifted by having family around him. I hope you can find strength and comfort to see you through the coming weeks and months by remembering the good times.
Louise Happy to be a physio by day, not happy to be a Spondy 24/7! 
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Joined: Feb 2010
Posts: 2,190
Major_AS_Kicker
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OP
Major_AS_Kicker
Joined: Feb 2010
Posts: 2,190 |
Thank you, everyone, for you good wishes. I have been so tired these last few days. I have been sleeping a lot and resting a lot. I guess it took a lot out of me. I am finally able to get some things caught up.
Donna
Cherish your yesterdays,
Dream your tomorrows,
But live your todays.
Do the very best you can
leave the rest to God.
God Bless,
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Joined: Jan 2009
Posts: 4,501 Likes: 1
Supreme_AS_Kicker
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Supreme_AS_Kicker
Joined: Jan 2009
Posts: 4,501 Likes: 1 |
Sorry to hear of your loss, but was glad to read that you were able to be with him. Sounds like the hospice was a place of respect and caring for all of you.
Kind of sounds like the Ronald McDonald House I lived in for 4 months while youngest son had a bone marrow transplant back in 1989. I kept my stuff in a room and spent nights/days at hospital, but we both lived in it the last month before going home. It was a special place for many families.
Also good to hear that you did well on the long trip. I've learned so much from this group about managing travel. Yea, Donna!
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
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Joined: Feb 2010
Posts: 2,190
Major_AS_Kicker
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OP
Major_AS_Kicker
Joined: Feb 2010
Posts: 2,190 |
One thing that we did was to take a DC cooler with us. We had all the cold water and soda we wanted, ham, lettuce and mayo for sandwiches with potato salad for lunches along the way. It kept my Humira cool and my ice pack cool, if not as cold as I would have liked. Even cool was a help. I just plugged into the power port in the back seat.
Donna
Cherish your yesterdays,
Dream your tomorrows,
But live your todays.
Do the very best you can
leave the rest to God.
God Bless,
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