Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Plantar Fibromatosis or Plantar Fibroma

In the last three years, I have developed two, what I believe are called plantar fibromatosis on the bottom of my left foot. On this SAME foot, I sustained an injury which torn the ligaments and tendons away from the bone in 2010 (was in a boot cast but no surgery).

Fast forward these three years since the injury, I have pains in that same foot at the heel bone (Calcaneus). The pain seems to intensify at night or when I have not had compression to the foot for a given period of time. I wear a tightly woven sock on that foot pretty much all the time to apply that compression that provides relief from the pain. After reading a number of resources, the pain seems to act like small fiber neuropathy (I cannot have heavy covers touching my foot without discomfort).

I feel like such a nut to be researching all these things but in the 20+ years since I was first diagnosed with AS, many things have happened that non-committing physicians did not associate to AS and as such, dismissed talking with me about them. I'm just on a roll to learn as much as I can and put the puzzle together so.....

HAVE ANY of you had Plantar Fibromatosis (or Fibroma) develop?

My son had a huge Planter wart cut out when he was in high school. I haven't heard of Plantar Fibromatosis. I have Planter Fascitis and the enthesitis of the inside of the bone will flare just sending me too the moon. I have a great Podiatrist on my team of A.S. Dr.s. So sorry, I know it hurts bad. I used to sleep with ice packs on my feet and yes, the sheets hurt.

I think it's part of the same family. There are some photos on the site below:

http://byebyedoctor.com/plantar-fibromatosis/

It can be sore to walk on for sure but the area above the heel is the worst and I wear a compression sock most of the time because of the pain (It feels like small fiber neuropathy). I just wondered if anyone else has had this...almost afraid to say anything to the doctor but when you don't you never get answers.

Hi, My name is Jolene. I have planter fibromatotis. Two (2) nodules on left foot. I had cortisone shot last year April 2012. it helped for 9 months. Both of them went away. They came back in Jan 2103. I went to get another shot of cortisone. This caused reverse reaction. They both grew larger. They are now about the size of chicklet gum. I found a doctor who has Fibroma patients. He has prescribed verapamil. I have been using this for almost 3 months. I go back June 25th for another ultra sound to determine if they are shrinking. It is a slow process. At this point I cannot tell if the verapamil has been working. I did have orthotics. They ended up hurting more than helping. I have purchase a pair of 'Go Walk' shoes from Kohl’s. I have had Great success wearing these shoes. No pain while walking. This shoes are cushioned and they are washable.

If anyone would like to email me directly please feel free to. Patty.carder@gmail.com I feel so all alone in this. I am hoping to find other people who have this issue. I can’t imagine living life this way. I am single 54. Live alone. It blows my mind as medical science can take a man and turn him into a woman. Yet they cannot figure out how to fix Plantar fibroma, bumps on the bottom of our feet. .

I am scared. I go to every prayer session I can find in the Atlanta area. I have mass amounts of people praying over me for the bumps to go away

They are not the same disorder and are not in the same family of disorders. They simply effect the same body part - the plantar fascia.

Plantar Fasciitis: an irritation of the plantar fascia that is the most common cause of heel pain. Plantar fasciitis is a painful inflammatory process of the plantar fascia which may be due to athletic activity, excess weight, prolonged periods of walking or standing. It also occurs more frequently in patients with Spondylorthropathies.

Plantar Fibroma: a relatively uncommon, benign, locally invasive lesion characterized by fibrous proliferation arising from the plantar fascia characterized by fibrous nodules in the plantar arch with frequent bilateral involvement. Typically painless but may cause vague to moderate pain. Fascial scarring and contracture may be seen late in the disease course. Radiographic findings are usually normal. Diagnosis is made with palpation of plantar nodules.

Help me out Stormy....what am I missing? On my link it states:


It's been a long day - maybe I'm missing something and my wires are crossed. I understand the difference between Plantar Fibroma and Plantar Fibromatosis to be one versus multiplanar.

I could be seeing the wrong reference but my comment was in response to Pea's quote:
If we are talking about the "Planter wart", then we are on the same page.

Hi CentralGaGal<
I Really appreciate you replying back to my post. I have been searching for a long time to find someone else who has this condition.

I take it you do not wear heels. Is this correct?
Does it cause you pain when walking or standing? If so, what do you do for the pain?
Do you feel them on the bottom of your feet?
Are they growing?
What type of work do you do?
Are you able to do all your activities?
How are you managing your life with this condition?

Please tell me everything

Currently I am not experiencing any pain. I cannot walk for long periods. Like walking the mall. Or standing in a long line. I use to take ballroom dance classes and I cannot partake in that any longer. it has altered my life tremendously. I’m not sure what makes them grow and I am worried to be on my feet for long as I think any activity I do will cause trauma to the foot and make them grow
I have seen both, a podiatrist and orthopedic. The orthopedic is the one who gave me the cortisone shots. The podiatrist is the one who has a few fibroma patients and has put me on the verapamil 15% gel cream.
I have been to four (4) different doctors. Thank you Patty

Hi SimplySouthern,
Thank you for replying back. It great to hear that your Fibroma is not growing. Do you know any other forums on PF?

Maybe I am just a pansy or something. But this FB condition has drastically taken me out of the game of life. By that I mean, I spend every weekend on the couch with foot elevated. During the week I go to work, come directly home and in bed. I use my foot to get from point A to point B and that's it.

All of my use to be friends are active like I once was. They don't have time to come hang out.They are busy taking ballroom dance class (as I did b4 PF) I'm single and it sure is a boring life now days.

Have you been able to collect UE?