Hi Maiga and welcome to the board. From Espania, verdad? I speak un poquito de espaniol. Happy that you joined us.
How old is your little boy? I would add, according to his age that he find a support group for children with chronic diseases as well. This will help him feel not so alone and that is so importante at any age. Call your local hospital to see if they have anything or a childrens hospital if one is local enough to drive to. If you can't find one then I would ask a psychologist if he should have some counseling to learn how to deal with his illness. I am doing this myself even at 54 years old. Ask his school counselor if she can help find someone and I would let her, the school nurse and the teacher know if you haven't already. I grew up with really bad asthma and my mother told as many of the adult's who were around me about it. They really helped me a lot.
Lo siento mucho your son has this disease. Por favor, stay with us and we will help you out as well along with your doctor's. Please do as much research as you can. This disease affects the whole body. Even de ojo's. Lo siento mi Spanglish is so mal!
